Friends of the Life Span Institute
Welcome to the new Lifeline Online
In recognition of our Fifty Years of Discovery Anniversary, we thought it was about time to spruce up our newsletter as well. This is the first attempt at a graphic version of the Lifeline Online that appears in the body of your email, rather than as an attachment. This is a bit tricky, so if you can at least read this, but things look strange, please contact me at website as are all previous issues.. This newsletter will also be on our
This is also an opportunity to introduce Drew Rosdahl, now appearing as my part-time assistant and assistant editor of the Lifeline, who is largely responsible for this redesign. Drew also works for the Research and Training Center for Independent Living.
Assistant Director for Communications
The Life Span Institute at the University of Kansas
1052 Dole Human Development Center
1000 Sunnyside Avenue
Lawrence, KS 66045-7555
(785) 864-4295 TDD
The front page of the Dec. 23 Kansas City Star featured a story on the success of increasing the social communication of children with autism spectrum disorder through a peer group intervention developed by Juniper Gardens Children’s Project researcher Kathy Thiemann described in an earlier issue of Lifeline.
LSI researcher and John Colombo, acting chair of the Department of Psychology, explains why smells might activate memories in the December 14 Lawrence Journal World.
The fall 2005 KU Spirit magazine credits the Borchardt family’s gift to the Beach Center on Disability to the shared experiences of Julie Borchardt and Beach Center Co-director Ann Turnbull, both mothers of children with disabilities.
Glen White, Director of the Research and Training Center on Independent Living, in collaboration with Liliana Mayo, founder and Director of Centro Ann Sullivan del Perú (CASP), a Life Span affiliate, will direct the first KU Study Abroad program of the Applied Behavioral Science Department. The program, Peruvian Culture and Disability, will give students from across the country an international perspective on disability within the context of CASP, an innovative training center and model school for children with autism and other developmental disabilities and their families. CASP was founded by Mayo, a KU graduate and KU Distinguished Service Citation award winner in her parent’s basement in 1979.
Rud Turnbull, co-founder and -director of the Beach Center on Disability with his wife, Ann, is also an attorney who has helped write some of the most important legislation and policy on the rights and protections of people with disabilities, including the original IDEA. Indeed, the Turnbulls have been honored by the AAMR for “changing the course of history" in the twentieth century for mentally retarded persons. They are also the parents of an adult son, Jay, who has multiple cognitive disabilities and a heart ailment.
In, “What Should We Do for Jay? The Edges of Life and Cognitive Disability,” Turnbull defends the “rights-creating” life he has led that has benefited Jay, but finds the “rights model” insufficient for edges of life decisions.
“I may have helped create rights but I may also have denied Jay the dignified death that my mother, father, and father-in-law had and that I want for myself and that other members of Jay’s (and my) family want for themselves and for me and, most significantly, for Jay.”
Turnbull thoroughly examines the guiding principles in law, medical ethics, religion and current case law in making edges of life decisions; discusses several for models for surrogate decision-making, and, finally, proposes a “post-rights paradigm” for making decisions that seeks balance between “rightness” and compassion.
The article was published in volume 9, no. 2 2005 Journal of Religion, Disability & Health
Also see, Turnbull’s testimony at April 6, 2005 Senate Health, Education, Labor Pensions (HELP) Committee on issues related to the Terri Schiavo case.
Ric Steele, assistant director of psychology and Life Span investigator, has been awarded a grant to study the effectiveness of a family-based intervention to promote healthy weight and treat obesity in children and adults. Steele contends that very few studies have examined the clinical effectiveness of obesity programs in real world settings. The four-year $737,000 grant is from the Department of Health and Human Services Administration’s Maternal and Child Health Bureau.
Susan Bashinski, Life Span research assistant professor and Beach Center on Disability researcher, will continue her research of deaf-blindness in children through a new three-year U.S. Office of Special Education Program $900,000 grant that she shares with two colleagues from Western Oregon University, which will administer the project. The scope of the grant includes identifying and assessing children with deaf-blindness in Kansas both before and after they receive cochlear implants.
While a stream of KU developmental disabilities faculty and students have traveled to LSI’s Peruvian affiliate, Centro Ann Sullivan del Perú, to support the award-winning training center and school for nearly 20 years, videoconferencing is making even closer collaboration possible.
Psychologist Matt Reese, training director of the LSI-affiliated Developmental Disabilities Center at Kansas University Medical Center, heads “dream teams” of experts from several specialties who diagnose children with suspected autism or other developmental disabilities. They often collaborate with physicians across Kansas through the KU Center for Telemedicine and TeleHealth and diagnosed two children in Peru this way in 2005.
Life Span Director Steve Warren along with Steve Schroeder, former LSI director and Carolyn Schroeder, both developmental disabilities experts and longtime major supporters of CASP, videoconferenced with some 70 professional CASP staff and visitors from other Peruvian provinces on communication, autism and sexuality for persons with disabilities.
The Kansas Institute for Positive Behavior Support (KIPBS), in collaboration with the Kansas Department of Social and Rehabilitation Services (SRS), convened its fourth class of professionals in training this month.
KIPBS, directed by Rachel Freeman, LSI research associate professor, is a joint state-KU effort to build consistency and additional expertise in Positive Behavior Support (PBS) among the ranks of professionals across the state who work with children who have serious behavior problems.
The new students are professionals from child welfare agencies, developmental disability agencies, and school districts from across the Kansas. KIPBS holds classes in several locations in Kansas to accommodate the working professionals during their 12-month training course that is supplemented by an extensive online curriculum. For more information.
Jonathan Pinkston, Ph.D., Biobehavioral Measurement Core Coordinator
The Biobehavioral Measurement Core of the MRDDRC took a New Year’s resolution to cut back on fatty food, excessive drink, and rodent testing. We have failed in our attempt at the latter.
The Complex Behavior and Learning testing site is up and running. The facility houses a wide array of instrumentation for the quantification of behavioral measures. Interested parties may preview the operations from the new MRDDRC website. The operations currently reside in space in the Higuchi Biosciences Center at KU, but will be moved to the second floor of Malott Hall in approximately one year.
The facility in Lawrence is complimented by the rodent testing facility located on the KUMC campus. While the Complex Behavior facility is primarily directed at motor and learning processes, the testing facility at KUMC is geared primarily to sensation and perceptual processes. Together these centers offer a wide range of procedures for investigating environmental, physiological, and developmental processes, as well as providing stable baselines in whole-organism systems for the measurement of pharmacological and genetic manipulations.
Additionally, the Transgenic and Knockout Mouse facility at KU in Lawrence has recently graduated from idea to architectural design: groundbreaking is expected around mid-summer this year. The facility will specialize in the production of genetically altered mice for models of human disease and developmental disorders. The role of the BMC in this facility will be to aid in the whole-organism measurement, or ‘behavioral phenotyping’, of such mice.
Alongside researchers examining other morphological and functional characteristics at the neuroanatomical and molecular level, such endeavors stand to improve our understanding of the relationship between environment, brain, and behavior. All in all, this year promises to be an exciting one for research employing rodent models. Additionally, these expanding territories keep us busy and thus help with our other 2006 resolutions.
Mary Margaret Simpson, Editor, Beach Center on Disability
The Beach Center hosted two national summits in Lawrence in January to form groups of advocates, practitioners, and researchers into “communities of action” that will tackle disability-related initiatives for the next two years.
The first meeting, held Jan. 9-10, focused on family support. About 35 participants attended, including leaders in family advocacy, self-advocates, grassroots organizations, policy makers, and academics.
A second summit on early childhood family supports and services convened January 23-24. More than 40 participants came from across the country to discuss policy and practice for young children with disabilities and their families and to propose a national agenda to enhance supports and services.
Representatives from the Office of Special Education Programs and the Bureau of Maternal and Child Health also participated via conference call.
The Beach Center hopes to outline necessary next steps in each area and to reconvene each group in about six months.
The summits were held as part of the Beach Center’s $3.75 million grant awarded in 2003 to study the effects of public policy on families who have children with developmental and emotional-behavioral disabilities.
The dropout rate for Hispanic ELL (English language learners) in secondary schools in Kansas is 77 percent. This is just one indication of a growing problem in Kansas and across the country as more students with diverse language skills enter school systems, while the number of teachers trained in ESL (English as a second language) or bilingual education has not kept pace.
Las Estrellas, a joint KU-KSU project, is beginning to address this problem in three Kansas school districts by training secondary teachers in research-based instructional and assessment methodologies, strategies and resources specific to ELL students. The program is directed by Lisa Bowman, assistant research professor at KU’s Juniper Gardens Children’s Project and coordinated by Tonnie Martinez, Kansas State University, ESL/Dual Language Program.
The participating schools are the Charles O. Stone Intermediate Center in Garden City, Salina High South, and Emporia High School where 95 percent of eleventh-grade ELL students tested scored in the unsatisfactory or basic categories of the Kansas Reading Assessment in 2000 and did not meet minimum standards of performance.
The project goals include implementing and disseminating a scientifically research-based professional development model targeting secondary teachers serving ELL students along with designing a curricula for professional development programs for pre-service and in-service teachers.
Ultimately, the project hopes to certify/endorse a total of 60 teachers for professional practice at the high school level and address the alarming shortage of endorsed teachers in districts where significant demographic changes are occurring.
The Kansas City Kansas public school district is considering the use of the Las Estrellas vocabulary curriculum-based measurement (CBM) model district-wide.
Las Estrellas teachers are serving as mentors in their schools in rural and urban districts and administrators have reported increases in parental involvement of their English language learners at one of the participating rural high schools.
Tiffany Hogan, an NIH predoctoral fellow in the Department of Speech- Language-Hearing was awarded the first Friends of Life Span Institute Graduate Research Assistant Award. The Friends group, now only in its second year, established the annual $1500 award to support the research and professional development of an outstanding graduate research assistant affiliated with a Life Span Institute project.
Hogan, who has been mentored by Life Span scientists and faculty Hugh Catts, Mabel Rice and Holly Storkel, has already garnered an impressive list of awards, recognitions and publications. Her research focuses broadly on the connection between oral and written language disorders and more recently on the influence of lexical restructuring on the development of early phonological awareness. She has accepted an assistant professorship at the University of Arizona beginning in fall 2006.
The Child Language Doctoral Program announces a call for applications for the Schiefelbusch Child Language Scholarships. The scholarships recognize outstanding graduate students in the study of child language and are named in honor of Richard L. Schiefelbusch, the first director of the Child Language Program as well as the longtime director of the Bureau of Child Research, the forerunner of the Institute that bears his name.
A $500 scholarship will be awarded in May 2006. The deadline for applications is March 31, 2006. Candidates must be a graduate student with a background in child language studies (including but not limited to students in the Child Language Doctoral Program, Linguistics, Psychology and Speech-Language-Hearing) and must not be previous recipients of this award. Candidates will be evaluated on the basis of academic preparation, productivity and professional development.
Applicants must submit five copies of the following to Patsy Woods, Child Language Doctoral Program, 3031 Dole Center.
A 500-word statement summarizing academic preparation, research productivity and professional development
A curriculum vita
An academic transcript (ARTS form).
Karen Henry, Assistant Director for Communications
As most of you are aware, during the last six months KU has rolled out several phases of a new visual identity system. Several of you attended a special presentation on this subject we held here, and I’ve tried to keep everyone informed through updates in the Lifeline and one-on-one meetings over the last year.
This system includes:
The Graphic Identity Standards that cover the basics of the visual ID, standards for print, including stationery, and guidelines for using the new trademarks on giveaways and commercially licensed products.
The KU Web Standards for all KU web sites that were released on January 17.
Still to come are standards for signage, among other things.
Needless to say, it seems clear that the success of this initiative is a high priority for the University and our compliance is expected. I think there are some important benefits for us. First, we can clearly show our relationship to each other and to KU – this will help our collective public image and the public’s understanding of KU. Second, the standards will help us look more professional. Few of us can afford to hire a web designer, for example, and the new KU template will help our web sites look well-designed. Even more importantly, we will all meet W3C accessibility standards, and since the web template is built to be globally updated, we won’t have to worry about redesign or future technical incompatibility and concentrate on our content.
I’ll summarize my understanding of how this will impact us below, but here are your contacts for questions about these issues:
Implementing the new KU web template and web development services: Julie Loats, director, enterprise web services
Trademark licensing – that is, the use of the KU visual ID on giveaways, t-shirts, etc.: Paul Vander Tuig , director of trademark licensing
Logos: All our current unit logos must be phased out in print and web. A project is also a unit for these purposes and project logos must all be phased out.
Exception: Special one-time or recurring events and activities – e.g., the LSI 50th anniversary, summer institutes, the Wheat State Tour, Homecoming, conferences, etc., may have logos created for those events.
Timetable: We have TWO years to use up existing stock of printed pieces such as brochures and stationery. New pieces need to be in compliance with the new standards.
We have ONE year to bring our web sites into compliance with the new web template. See below for help.
Instead of current unit logos?
In lieu of existing logos, certain units were given variations of the new KU logo (aka the KU signature when it is combined with the words, The University of Kansas).
The Life Span Institute was one of those units. We received several variations of our logo. Two examples, one with the unit in the primary position (A), the other with KU in the primary position (B), are shown below. These two position choices include horizontal and vertical, 4-color, 2-color, 1-color and black and white versions. These signatures cannot be altered in any way.
In the research world, only the designated research centers and the two surveys – Geological and Biological – were given these kinds of logo/signatures. In the academic world, the Schools got signatures; the departments did not. Likewise, the LSI centers will not be getting their own versions of the KU signature and may not create their own versions.
How this impacts LSI centers and projects:
Stationery: The standards for stationery, including business cards, are the most explicit of the standards and are explained in the Graphic Identity Standards. Since the new stationery shows hierarchy, all LSI-affiliated centers’ stationery will look like the example on page 22 on the Standards. Your unit name will be where the “Department of Communication Studies” is in that example and the KU/LSI logo will be where in the KU/College of Arts and Sciences logo position.
We will all be ordering stationery online from a designated vendor at http://www.identity.ku.edu/order/ although when we can begin to do that is still not definite. Keep checking that web page for updates. The hierarchy of all units will be built into that online system. You will be able to see and approve a proof online.
An MS Word letterhead template is under consideration for those of you who print your correspondence from your own desktop printers.
Brochures, reports, non-conference posters newsletters, etc.: These standards are more flexible. While we still cannot use our existing logos, create new logos or substitute either the Jayhawk or the University seal as a logo for these uses, units like LSI can use one of the variations of their new KU/LSI logo as can LSI-affiliated centers and projects. See example below. In this case, the Department of English is branding itself as a KU entity with its parent organization’s logo - as LSI centers can do with the KU/LSI logo.
However, notice that the department name is the more prominent graphic element. As I understand it, as long as the design doesn’t contain a competing logo - a graphic symbol or stylized type – the piece will be in standards. So, for example, although this newsletter will use the masthead consistently, we believe we meet that test.
As an aside, you cannot use the University seal in whole or as part of a montage or design. Some good news - you can use the Jayhawk as a design element under certain circumstances detailed in the Graphic Standards. See example below.
We will provide LSI centers with the KU/LSI logos on CD for use in print pieces and web sites. Contact Chris Lorenzen. The use of these logos is specified in the Graphic and Web Standards, however, so please read these first. Remember, they cannot be altered in any way except in size.
Still more flexible are the Web Standards that allow almost everything (except existing logos) within a standard KU masthead and footer. Having said that, we have been encouraged to take advantage of the other design elements – type, color, layout that has also been pre-designed and are available for web designers to employ. There is even an option to offer a search function that would be limited to your site. Below is one adaptation of the new template. The designers have provided guidance and tools for several variations.
You can get an orientation to the new web standards at one of the sessions of the Understanding the KU Web Site and Template workshop. Web developers should also attend the remaining open session of the hands-on workshop.
KU Web Services provides a very reasonable for-fee service to migrate your existing site to the KU Web Template. Contact Julie Loats at 864-0464.
One area of concern is how the LSI departmental web server can technically support the implementation of these web standards. I am following up on this and will let you know as soon as possible.
Finally, if you want to make a case for your center or project getting an exception to the standards or if you have any questions, you should start with David Johnston.
Keep in mind, though, that very few units got exceptions from the identity standards.
A further discussion of this issue will be on the agenda of the upcoming LSI Director’s Meeting.
Paul Diedrich, Associate Director for Project Development and Jessica Black, Grant Monitor
Past Submissions not Previously Reported
1. Judith Carta, Charles Greenwood, Jane Atwater and Dale Walker submitted a new, five-year proposal “The Center for Ecological Studies of Early Language and Literacy” to the University of Nebraska-Lincoln, prime contractor to DE-IES, on November 10, 2005.
2. Janet Marquis submitted a new, five-year proposal “Evaluation of the Strategic Instruction Model (SIM) Striving Readers Initiative to the Kansas City, Kansas School District, prime contractor to DE-OESE, on November 14, 2005.
Three Concept Papers were submitted to the Sunflower Foundation in response to their Healthy Behaviors and Prevention competition on November 15, 2005:
3. Joseph Donnelly and Richard Saunders’ “Promoting Healthy Habits at Work Sites for Adults with Developmental Disabilities”;
4. Jerry Schultz and Stephen Fawcett’s “Supporting Community Efforts to Create Environments for Healthy Living”; and
5. Rice Steele’s “Development, Implementation and Evaluation of the ‘Healthy Eating and Lifestyle Patterns (HELP) for Growing Children’ Project”.
6. Heather Hunter (Richard Steele – Faculty Sponsor) submitted a new, one-year NRSA individual, predoctoral minority fellowship “Evaluation of the HELP for Growing Children Project” to NIH on November 15, 2005.
7. Amy McCart submitted a new, one-year proposal “Using Technology to Facilitate District and Building-Level Reading/Literacy and Behavioral Outcomes for Students Across Kansas” to the Northeast Kansas Education Service Center on November 15, 2005.
8. Michael Wehmeyer submitted a new, four-year proposal “Determining the Efficacy of the Self-Determined Learning Model of Instruction to Improve Secondary and Postsecondary Outcomes for Students with Cognitive Disabilities to DE-IES on November 17, 2005.
9. Katherine Froehlich-Grobe, Todd Little and Paula Rhode (KUMC) submitted a new, three-year proposal
“Promoting Health and Wellness Among Women with Disabilities” to HHS-HRSA on December 2, 2005.
10. Julie Sergeant (Todd Little – Faculty Sponsor) submitted a new, three year NRSA postdoctoral fellowship “Personal Agency and Well-Being in Older Populations” to NIH on December 5, 2005.
11. Timothy Nelson (Richard Steele – Faculty Sponsor) submitted a new, one-year NRSA individual, predoctoral fellowship “Factors Influencing Practitioners’ use of EBTs” to NIH on December 5, 2005.
12. Amy McCart submitted a new, two-year Letter of Intent “Integrating Effective Evidence-Based Approaches to Working with Young Children and Their Families: Focusing on Co-Occurring Behavioral and Mental Health Disorders in At-Risk Families” to the Health Care Foundation of Greater Kansas City on December 9, 2005.
13. Chris Smith submitted a new, eighteen-month proposal “Evaluation of ODMR/DD’s Quality Assurance/
Quality Improvement in Home and Community Based Services” to the Ohio Department of Mental Retardation and Developmental Disabilities on December 13, 2005.
14. Martha Hodgesmith submitted a second-year continuation “Comprehensive Training for Personnel of Hospitals, Public Health, Emergency Responder Agencies in Disaster Preparedness and Emergency Response for Persons with Disabilities” to the KSH&E on December 16, 2005.
15. Charles Greenwood and Kathy Thiemann submitted a new, eighteen-month proposal “The Efficacy of a Comprehensive LENA Intervention on the Language Environment and Early Language Learning of Typically Developing Infants and Toddlers” to Infoture, Inc. on December 16, 2005.
16. Steven Warren and Peter Smith, in conjunction with numerous other contributors, submitted the competing continuation “Kansas Mental Retardation and Developmental Disabilities Research Center” to NICHD on December 21, 2005.
17. Joseph Donnelly submitted a six-month proposal ‘7th Annual Obesity Conference” to the Sunflower Foundation on December 21, 2005.
18. Judith Carta and Wayne Sailor submitted their fifth-year continuation “Advancing Multiple-levels of Evidence-Based Practice for Children with Challenging Behaviors and their Families” to the University of South Florida, prime contractor to DE-OSERS on December 21, 2005.
19. Todd Little submitted his second-year continuation “Emerging Language and Literacy Project” to the Children’s Therapeutic Learning Center on December 30, 2005.
20. Michael Hammer (Steven Barlow – Faculty Sponsor) submitted his second-year continuation “Laryngeal Sensorimotor Control in Parkinson’s Disease” to NIDCD on January 1, 2006.
21. Janet Marquis submitted a new, nine-month proposal “School Readiness Project” to KSDE on January 4, 2006.
22. Amy McCart submitted a new, six month SBIR “The e-Serve Initiative” to Software Outfitters, Inc., prime contractor to DE-IES on December 10, 2006.
23. Amy McCart was invited to submit a new, proposal “Integrating Effective Evidence-Based Approaches to Working with Young Children and Their Families: Focusing on Co-Occurring Behavioral and Mental Health Disorders in At-Risk Families” to the Health Care Foundation of Greater Kansas City on January 13, 2006.
Upcoming Proposal Submissions
We will report on the February 1st NIH and the February 6th DE-NIDRR-FIP submissions in the next newsletter.
Likewise, we will report on any new funding, there are approximately half-dozen awards that are pending at this time.
Sara Sack has been appointed to be reviewer for American Speech –Language-Hearing Association Division on Augmentative and Alternative Communication for a two year.
Summers, J.A., Poston, D.J., Turnbull, A.P., Marquis, J., Hoffman, L., Mannan, H., & Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49(10), 777-783.
Blaga, O., & Colombo, J. (2006). Visual processing and infant ocular latencies in the overlap paradigm. Developmental Psychology, in press.
Cheatham, C.L., Colombo, J., & Carlson, S.E. (2006). N-3 fatty acids and cognitive and visual acuity development: Methodological and conceptual considerations. American Journal of Clinical Nutrition, in press.
Anderson, C.J., & Colombo, J. (2006). Pupillary responses and visual scanning in children with autism spectrum disorder. Journal of Clinical and Experimental Neurology, in press.
Colombo, J. & Cheatham, C. (2006). The emergence of endogenous attention in infancy and early childhood. In R. Kail (Ed.), Advances in child development and behavior, in press.
Hann, D., & Colombo, J. (2006, in press). Institutional review boards. In N. Salkind (Ed.), Encyclopedia of measurement and statistics. Newbury Park, CA: Sage Publications.
Colombo, J. (2006, in press). Maternal DHA levels and the development of attention in infants and toddlers. Pediatric Perspectives Newsletter, 5(3): Evansville, IN: Mead Johnson Nutritionals.
Dr. Lisa Bowman and Kansas State University colleagues Drs. Socorro Herrera and Tonnie Martinez presented on student and teacher outcomes at the Office of English Language Acquisition’s (OELA) annual conference in Washington, DC