In This Issue
The Lifeline Online is a newsletter of the Schiefelbusch Institute for Life Span Studies at the University of Kansas Online, printable version and back issues.
Karen Henry, Editor
The Life Span Institute at the University of Kansas 1052 Dole Human Development Center 1000 Sunnyside Avenue Lawrence, KS 66045-7555 (785) 864-4295 TDD (785) 864-5051 lsi.ku.edu
The Centers and their inception dates
The Schiefelbusch Institute for Life Span Studies is a center of centers collectively dedicated to discovering research-based solutions for the challenges of human and community development, disabilities, and aging.The Life Span Institute at Parsons 1956
Juniper Gardens Children's Project 1964
Kansas Mental Retardation and Developmental Disabilities Research Center 1967
Kansas University Center on Developmental Disabilities 1973
Research and Training on Independent Living 1980
Child Language Doctoral Program 1983
Beach Center on Disability 1988
Gerontology Center 1990
Merrill Advanced Studies Center 1990
Work Group for Community Health and Development 1990
Center for Physical Activity and Weight Management 2001
Center for Biobehavioral Neurosciences in Communication Disorders 2002
Friends of the Life Span Institute
In the News
Steven Warren's op-ed supporting increased newborn screening appeared in the Wichita Eagle and Lawrence Journal-World. The Kansas Legislature is considering legislation increasing screening for the 29 treatable disorders. Kansas currently screens for only four disorders putting it near the bottom of the states. The bill is expected to go to the House floor the week of March 26.
Education Week discussed Wayne Sailor's newly funded $1.5 million DOE grant to train teachers and school administrators in Kansas and Illinois in behavior-support techniques using response to intervention or RTI. RTI is an instructional approach to identify and treat children with learning difficulties before they fall behind their peers.
The Research and Training Center on Independent Living (RTC/IL) issued a final report and executive summary on its study of the impact of Hurricane Katrina on people with disabilities in January.
The project sought to understand the roles and relationships that Centers for Independent Living (CILs) played in all phases of the disaster, with a special emphasis on their relationship to the emergency management system.
The RTCIL’s past research in the field of emergency preparedness and persons with disabilities lead to a grant from The National Institute on Disability and Rehabilitation Research (NIDRR) that was awarded in December 2005.
The project team was lead by Glen White, RTCIL director, Michael Fox, associate director, and Anthony Cahill, professor at University of New Mexico. Catherine (Cat) Rooney was the acting project director.
The project’s findings, based upon extensive individual personal interviews and focus groups, revealed three significant gaps in areas affecting persons with disabilities: ineffective pre-disaster planning by CILs, persons with disabilities, and emergency management; poorly developed pre- and post-disaster communication and information sharing within and between these three entities; and underdeveloped pre- and post-disaster coordination between these three entities and other elements of support within communities.
The project’s recommendations build upon these findings. First among those is the recommendation statewide CILs should have leadership roles to bring together disability and emergency management organizations in all states.
Assessing the Impact of Hurricane Katrina on Persons with Disabilities was distributed to more than 500 people in the health, disability, and emergency preparedness fields.
NIDRR director, Steve Tingus expressed pride in the report and recommend that the research findings be shared with senior leadership both at the White House and with the U.S. Department of Education.
Raj Goyle, Kansas State Representative, 87th District, praised the report. “Thanks for sending this excellent report. I visited the region in Nov 05 and saw the devastation first-hand. I am glad you are drawing important lessons from the disaster for the future.”
Centers for Independent Living (CILs), like Lawrence's Independence, Inc., are non-residential, private, non-profit organizations that provide core services and advocate for persons with all types of disabilities on issues such as access to housing, employment, transportation, health and social services.
The executive summary and the full report can be downloaded from Center’s web site.
Judy Carta, Senior Scientist and Director of Early Childhood at the Juniper Gardens Children's Project, received the Award of Excellence from the Kansas Division for Early Childhood (KDEC), a subdivision of the Division for Early Childhood, Council for Exceptional Children on February 23rd at the 25th annual meeting of KDEC in Wichita, Kansas.
The Award of Excellence honors an individual who has “…made significant contributions to the field of early intervention through publications, research, development of new concepts and approaches, improved psychological or education evaluation procedures, practical application of improved teaching devices, and dynamic leadership.” Carta was cited as a leader in the field who has contributed through scholarship, dedication and seemingly boundless energy and focus on improving outcomes for young children throughout Kansas and the nation.
Letters supporting her nomination indicated that Carta received the award in recognition for her outstanding contributions to the field of Early Childhood Special Education over the past three decades. She was recognized for her numerous scholarly publications, her editorship of Topics in Early Childhood Special Education; numerous national and international presentations; her dedication to research on topics of paramount importance to the field; her development of methodology and curricula; her teaching, mentorship, collegiality and service both as a professional and as a parent of a young adult with autism.
Carta has made major contributions to understanding the cumulative effects of substance exposure on development, how to best assess and utilize measures of growth and development with very young children, how to address the needs of children with multiple risk factors, and how to evaluate the effectiveness of early intervention efforts.
She has led research on the effects of domestic violence, poverty, adolescent parenting, and child neglect. Her work has been balanced by equal focus on experiences that promote developmental resilience, such as Early Head Start, best practice in early intervention, promotion of early literacy, and home-based intervention for high-risk mothers and children. A distinctive feature of her work that was noted has been the emphasis on moving systematically from descriptive studies to understand the problem at hand, to the development and validation of promising assessments and interventions, to real-world application and dissemination. Finally, it was noted that her research is driven by a “rock solid” dedication to the children and families it is ultimately intended to benefit.
The Beach Center on Disability launched a new web site on March 6, which features photos of families with whom the Beach Center has worked and prominently displays the Center’s core values. Redesigned to reflect KU’s new visual identity standards, the site organizes research programs into prominent, easy-to-understand categories. A Resource Library functions as an on-line card catalogue, enabling visitors to find articles by title, subject, or researcher. Navigation throughout the site was also simplified in the new version. Plans call for ultimately including multi-media, such as videos, and other new web technologies. Beach staffers Mary Margaret Simpson, editor, and David Stowe, systems specialist were the hands-on managers of the ambitious project.
Intraindividual Variability: Weaving Through the Warp and Woof - Wednesday, April 4, 8:30-11:30 in the Jayhawk Room of the Kansas Union
Nilam Ram will discuss the definition of intraindividual variability and will describe 3 types: intraindividual profiles, intraindividual change over time, and intraindividual variability. Two types of univariate variability will be described: gross (spontaneous no trends) and patterned (ordered or organized changes). The advisability of compressing multiple occasions in to a single score and how to separate signal from noise will be discussed. Multivariate intraindividual variability and covariation between two distributions of scores and dynamic relationships among variables will also be discussed. Finally, how to incorporate heterogeneity into an analysis and other design considerations will be described.
The topic for the morning session will be a general overview of modeling intraindividual variability. Many researchers collect multiple data points on individuals, either by collecting multiple variables at one occasion, or by conducting many trials, or by collecting measures over many occasions, or some combination of all these. Often the researcher loses the information in these data by aggregating over subsets of the data points. Ram, will present different methods for analyzing the intra-individual variability found in these types of data.
Different models will be described and the criteria for choosing among them will be discussed. For those of you who are particularly interested in this topic, we have available copies of articles that you may want to read. If you are interested in further discussions of the techniques described or in discussing issues relevant for data that you have collected or are planning to collect, the speaker will be available for consultations the afternoon of April 4.
Faculty and non-student staff registration fees are $25. Graduate student fees are $15. Reservations will be accepted on a "first-come, first-serve" basis with associates of the LSI/MRDDRC being given the first opportunity to participate. Because the number of participants will be limited, please register by March 30th (contact Kandace Fleming). Any remaining openings after that date will be offered to other interested persons in the University community.
About the Speaker: Nilam Ram is a professor at The Pennsylvania State University in the Department of Human Development and Family Studies. He is interested in studying how short-term changes (e.g., processes such as learning, information processing, etc.) develop over the course of the life span and how intraindividual change and variability study designs (e.g., measurement bursts) might contribute to our knowledge base. He is also investigating how we can maintain a focus on the individual while still tackling issues of aggregation and generalizability.
John Colombo, Professor of Psychology and Life Span Associate Director for Cognitive Neuroscience has been named Associate Editor of the journal, Child Development, the top journal for developmental science. His term begins in July 2007.
Colombo, who is also a core director of the Center for Biobehavioral Neurosciences in Communication Disorders, has research interests in the developmental cognitive neuroscience of visual attention, recognition memory, and learning in infancy and early childhood with a special focus on early individual differences in these areas and how they relate to mature intellectual function and developmental status. Additionally, he has researched auditory development, the organization of sleep-wake states in infancy, the effect of early experience on the central nervous system and behavioral development, and motoric/physical development in infancy.
Life Span Institute Director Steve Warren presented before the President's Committee for People with Intellectual Disabilities on February 15. Originally created by President John F. Kennedy as the President's Panel on Mental Retardation, it is a committee of Cabinet and other representatives who advise the administration on policies and issues related to intellectual and developmental disabilities.
Warren's presentation was Developmental Disability Research Centers: Prospects for Clinical and Translational Impact. He was also on a panel with George Jesien, Executive Director of the Association of University Centers on Disabilities and Patricia Morrissey, Commissioner of the Administration on Developmental Disabilities.
As part of an invited conference on consumption and generational change, Gerontology Center Director David Ekerdt presented a paper on “Dispossession” at the University of London. Ekerdt is currently conducting research on the accumulation, management, and disposition of possessions in later life.
The conference itself examined aspects of aging and the consumer economy in Britain, France, and the U.S. The view of the older population that has prevailed though much of the 20th century emphasizes needs, problems, and dependency. Population aging has often been cast as a burden on society.
By contrast, a new outlook is emerging that is more optimistic about later life, emphasizing elders’ role as consumers who are active in the definition of their own identity. They can also be seen as a market, resource, and opportunity for initiative. This theoretical ferment—how to balance the focus on vulnerability vs. ongoing self-development—is currently invigorating the field of gerontology. The profound ambivalence about aging—optimism and pessimism all at once—has created lively debates within the field, along with new conceptual frameworks for research.
The seventh annual Sertoma-Schiefelbusch Communication Camp, directed by Jane Wegner who also directs the Schiefelbusch Speech-Language-Hearing Clinic), is accepting registrations for the two-week sessions for children and teens ages 4 to 17 until May 1.
The camp is a collaborative effort between the Lawrence Sertoma Club and the Schiefelbusch Speech-Language-Hearing Clinic. The Communication Camp brings together children and youth with and without communication challenges to have fun and improve their communication skills. The Camp is staffed by students and faculty from the Schiefelbusch Speech-Language-Hearing Clinic. The camp is $100. For children with communication challenges, $80 of this fee will be provided by the Lawrence Sertoma Club. Limited scholarships available by request. Registration forms and more information.
Rud Turnbull and Ann Turnbull, co-directors of the Beach Center on Disability, attended the first reunion of the Joseph P. Kennedy, Jr. Foundation Public Policy Fellows Program March 2-4 in Washington, DC.
Rud Turnbull was a Kennedy Fellow in 1987-88, assigned to Senator Tom Harkin (D-Iowa) who chaired the Senate Subcommittee on Disability Policy (now abolished). Ann Turnbull was a Fellow assigned to both the U.S. Department of Education and Rep. George Miller (D-7th district, CA) chairman of the Select Committee on Children, Youth, and Families. At the reunion, Rud was one of nine panelists who presented (out of nearly 50 Fellows who attended). He described the Beach Center’s work on family support policy and particularly its relationship to Medicaid and the soon-to-be reauthorized Developmental Disabilities Assistance and Bill of Rights Act.
The Turnbulls and the other Fellows also joined Eunice Kennedy Shriver and Ambassador Sergeant Shriver at their home for dinner. Both Turnbulls visited individually with Mrs. Shriver (Ann had been a member of the Board of Directors of International Special Olympics in the mid-1980s) and toured a home that, as Rud described, “is a museum to the Kennedy-Shriver legacy in intellectual disability,” full of family photographs, letters from the Kennedy children to their parents, citations and diplomas, and presidential Standard (flags) from the time John Kennedy was President.
Michael Fox, RTC/IL Associate Director, will serving as visiting scholar at Monash University School of Medicine in Malaysia and the National University of Singapore in March through a grant from the Christopher Reeve Foundation.
Ann Turnbull, Beach Center co-director, and Jean Ann Summers, Beach Center co-director of Research, have received a Research Utilization Support and Help (RUSH) grant, which is a supplement for knowledge translation from the National Institute on Disability and Related Research. The $100,000 funding will be used to develop a web-supported national Community of Practice to focus on improving the quality and quantity of family support for families of young children with disabilities. The web-supported CoP will integrate the best available research with family values and wisdom and professional values and wisdom.Hine testifies on Kansas time-out and physical restraint regulations
Parsons LSI researcher Katie Hine testified before the Kansas State Board of Education on February 13. Hine spoke in support of the proposed regulations for the use of physical restraint and seclusion rooms in schools.
The proposed regulations identify the conditions under which seclusionary time-out and physical restraint are applicable, and specify the steps intended to guide the ongoing use of these potentially restrictive procedures. Hine also proposed that the regulations include a process for objective human rights review and monitoring of behavior support programs utilizing restrictive procedures.
Hine is the Supervisor of the Southeast Kansas Pilot Project to Replicate the Oregon Model of Intervention With Antisocial Youth Families.
Editor's Note: In 2004, the Work Group for Community Health and Development was designated by WHO as an official collaborating center.
In March, Steve Fawcett, Director, has been consulting with the Health Promotion and and Health Equity sections at the World Health Organization in Geneva. KU´s WHO Collaborating Centre for Community Health and Development has developed methods for building capacity and for evaluating collaborative action to promote health.
The Beach Center on Disability hosted a federal inter-agency meeting on February 28 in Washington, D.C., as part of its national Early Childhood Family Support Community of Practice. The 40 participants included project officers from seven federal agencies: the National Institute on Disability and Rehabilitation Research, the Office of Special Education Programs, the Institute of Education Sciences, Head Start, Maternal and Child Health, the National Institute for Child Health and Human Development, and the Substance Abuse and Mental Health Services Administration. In addition to project officers, most agencies were represented by a family leader affiliated with their projects and a key researcher whom they have funded. The four goals of the meeting were as follows:
It is time again to prepare annual evaluations for all unclassified staff.
Every unclassified employee must have a job description filled out using the LSI Unclassified Employee Evaluation form. This form can be found on the LSI web site at http://www.lsi.ku.edu/lsi/internal/evaluation.html
Supervisors must evaluate the employee's job performance for the past year based on the responsibilities described in his or her job description.
Those senior research staff who are self-reporting should also report their accomplishments using this form describing their responsibilities and accomplishments. Additional materials can be appended if needed.
Send completed evaluations to Ed Zamarripa at LSI by Monday, March 26. Please note that any merit salary increase will be based on these evaluations so it is essential that everyone comply. If a staff member does not have an annual evaluation on file in this office, the staff member will not be eligible for a salary increase.
Final note. After the annual evaluation has been submitted, the supervisor should confer with each employee and together, develop a set of goals for the coming year. These goals can then be added to the evaluation that was submitted, but clearly labeled "Goals for FY 2007-8." These goals can be used as part of the evaluation process next year. The LSI Position Description Menu and Instructions are also at http://www.lsi.ku.edu/lsi/internal/evaluation.html. If you have any questions, please call Ed Zamarripa.
April 6 1:30-2:30 Median Splits and Extreme Groups
April 13 1:30-2:30 Distribution of Cronbach's Alpha for Ordinal Data: A Bayesian Based Approach
May 11 3:30-5:00 Factorial Invariance and Developmental Change Measurement: Another
Gander at the Goose that Laid the Golden Egg
Open Forum Discussion of John Nesselroade’s Distinguished Contributions to Psychology
New Awards (not previously funded) Information
1. Dale Walker, Charles Greenwood and Judith Carta received a new, one-year award “Evaluation Workscope of Early Communication Indicators” from the Kansas SRS that began July 1, 2006.
2. Wendy Parent received a new, eight month proposal “APBS Conference Planning” from the Association for Positive Behavior Support that began September 1, 2006.
3. Mabel Rice received a new, five-year subcontract “Autism: Social and Communication Predictors in Siblings” from the Kennedy Krieger Institute, prime contractor to NIH, that began December 1, 2006.
4. Ann Turnbull received a new, sixteen-month award “Investigating Communities of Practice (CoP)” from the Southwest Educational Development Laboratory - RUSH competition, prime contractor to DE/NIDRR that began January 1, 2007.
We have been unofficially notified about another half-a-dozen newly funded projects that we hope to be able to announce in the next issue.
Past Submissions not Previously Reported
1. Rachel Freeman submitted a new, nine-month proposal “Preventing Violence – Building Healthy Schools and Communities: The Kansas Positive Behavior Support Project” to KSDE on December 15, 2006.
2. Amy McCart submitted a new, two-year subcontract for a Phase II SBIR, “The e-Serve Initiative: An Empirically Supported, Web-based Educational Decision-Making Product, Nested Within a Response to Intervention (RTI) Framework, to Better Support Teacher Efficacy and Efficiency Resulting in Improved Student Outcomes” to Software Outfitters, Inc., prime contractor to DE-IES, on January 29, 2007.
Two new proposals were submitted to the DE-NIDRR-Field Initiated Program on January 31, 2007:
3. Muriel and Richard Saunders submitted a new, three-year proposal “Assessment of Sensory Sensitivity and Learning of Individuals with Profound Multiple Impairments”; and
4. Amanda Reichard submitted a new, three-year proposal “Development and Testing of Technology-based Training Program for Self-Advocacy of Post-Secondary Students with Disabilities”.
5. Matthew Stowe submitted a new, three-year RO1 “Disability Community Perspectives on Human Genetic Research and Technologies” to NIH on February 5, 2007.
6. Joseph Donnelly, Bryan Smith and Richard Washburn submitted a new, three-year subcontract “Brain Function Predictors and Outcome of Weight Loss and Weight Loss Maintenance” to the KU Medical Center (Cary Savage, PI) prime contractor to NIH, on February 5, 2007.
7. Jerry Schultz, Stephen Fawcett and Donald Stull submitted a new, six-month proposal “Measuring Social Capital in Kansas Communities” to the Kansas Health Institute on February 5, 2007.
8. Michael Wehmeyer, David Lindeman and Chet Johnson submitted a five-year renewal “Kansas University Center on Developmental Disabilities” to HHS-ADD-ACF on February 12, 2007.
9. Amy McCart submitted a new, four-year subcontract “Internet-based Fidelity Enhancement of School-based Mental Health Services: Classroom Super Tech” to the Oregon Research Institute, prime contractor to NIH, on February 23, 2007.
10. Muriel and Richard Saunders submitted a new, one-year proposal “Pilot Evaluation of the Impacts of Special Olympics Healthy Athletes® Screening Events on Referral Follow-up and Health Behavior of Special Olympic Athletes” to Special Olympics on February 23, 2007.
The Kansas Department of Health and Environment submitted their five-year “State Implementation Projects for Preventing Secondary Conditions and Promoting the Health of People with Disabilities” to CDC on March 9, 2007. They invited the RTC/IL to submit Optional Module Activities – four were submitted:
11. Glen White – Module A – “Implementing Evidence-based Interventions”;
12. Muriel and Richard Saunders – Module B – “You Cannot Reduce What You Have Not Measured”;
13. Michael Fox – Module C – “Emergency Preparedness” via a subcontract from the KU Medical Center; and
14. Michael Fox – Module F – “Expanding State Disability Surveillance Capacity in Kansas” also via a subcontract from the KU Medical Center.
15. Holly Storkel submitted her second-year, progress report “Word Learning in Children: Normal Development and Language Impairment” to NIDCD on March 1, 2007.
16. David Lindeman, in collaboration with Emporia State University, submitted a one-year proposal “Child Care Focus (CCF): Resource, Training and Technical Assistance for Southeast Kansas” to the Kansas Association Child Care Resource and Referral Agency on March 1, 2007.
17. Cheryl Utley and Paul Markham submitted a new, five-year proposal “Culturally Responsive/Evidence-based Teaching Practices for Mainstream Secondary Educators of English Language Learners” to DE-OELA in response to their National Professional Development Program competition on March 1, 2007.
18. John Colombo submitted a new, two-year proposal “Tonic Levels of Alpha-Amylase in Young Children with Autism Spectrum Disorders” to Autism Speaks on March 5, 2007.
19. Yolanda Jackson and Todd Little resubmitted their four-year proposal “Testing Determinants of Resilience: Child Maltreatment and the Development of Adaptive Behavior” to NIMH on March 5, 2007.
20. Wendy Parent submitted a new, six-month proposal “A Blueprint for Retooling Employment Options” to the Illinois Council on Developmental Disabilities on March 6, 2007.
21. Sara Ferguson will resubmit her three-year RO3 “Acoustic Correlates of Clear Speech” to NIDCD on
22. Jane Atwater will submit a new, one-year proposal “Connections Centralized Intake and Referral System” to KUMCRI via Project Eagle, prime contractor to the Social Security Administration on March 14, 2007.
23. Judith Carta and Steve Warren, in collaboration with John Borkowski @ Notre Dame, will submit their second-year continuation “Preventing Child Maltreatment Through a Cellular-Phone Technology-based Parenting Program” to CDC on March 16, 2007.
Todd Little has been promoted to Senior Scientist.
Sara Sack has been promoted to Senior Scientist.
Jean Ann Summers has been promoted to Full Research Professor.
Jiang, J., Auer, E. T., Alwan, A., Keating, P., & Bernstein, L. E. (in press). Similarity structure in visual speech perception and optical phonetic signals. Perception and Psychophysics.
Auer, E. T.,Jr., Bernstein, L. E., Sungkarat, W., & Singh, M. (In press). Vibrotactile activation of the auditory cortices in deaf and hearing adults. Neuroreport.
Auer, E. T., Jr., & Bernstein, L. E. (In press). Enhanced visual speech perception in individuals with early-onset hearing impairment. Journal of Speech Language and Hearing.
Fox, M. L., White, G. W., Rooney, C., & Rowland, J. (in press). Disaster Preparedness and Response for Persons with Mobility Impairments: Results from the University of Kansas Nobody Left Behind Study. Journal of Disability Policy Studies.
Ravesloot, C. R., Seekins, T., White, G. W., Cahill, A., Lindgren, S., & Nary, D. E. (in press). Health Promotion for People with Disabilities: Development and Evaluation of the Living Well with a Disability Program. Health Education Research.
Rooney, C., & White, G. W. (in press). Consumer Perspective: A Narrative Analysis of a Disaster Preparedness and Emergency Response Survey from Persons with Mobility Impairments. Journal of Disability Policy Studies
Rowland, J. L., White, G. W., Fox, M. L., & Rooney, C. (in press). Emergency Response Training Practices to Assist People with Disabilities: Analysis of a Sample of Current Practices and Recommendations for Future Training Programs. Journal of Disability Policy Studies.
Rowland, J.L., White, G.W., & Wyatt, D.A. (in press). Analysis of an Intervention to Reduce or Prevent Secondary Conditions Among People with Newly-Diagnosed Spinal Cord Injuries. Journal of Clinical Psychology in Medical Settings. White, G. W. (in press). Katrina and other disasters: Lessons learned and lessons to teach. Journal of Disability Policy Studies.
Saunders, R. R. (2007). Residential and day services. In J. W. Jacobson, J. A. Mulick, & J. Rojahn (Eds.), Handbook of Intellectual and Developmental Disabilities (pp. 209-226). New York: Springer
Storkel, H. L., Armbruster, J., & Hogan, T. P. (2006). Differentiating phonotactic probability and neighborhood density in adult word learning. Journal of Speech, Language, and Hearing Research, 49, 1175-1192.
Mitchell, L., Lindeman, D. P., Bowman, D., & Martinez, R. (2007, February). Working together to improve early childhood services in Kansas: SICC working together with LICCs in Kansas. Paper presented at the Kansas Division for Early Childhood 2007 Multidisciplinary Conference, Wichita, KS.
Lindeman, D. P., Goosen, M., Rinkel, P., Bayless, R., & Page, K. (2007, February). Kansas inservice training system: Initiatives and services. Four posters presented at the Kansas Division for Early Childhood 2007 Multidisciplinary Conference, Wichita, KS.
Smith, C. L., & Cress, P. (2007, March). Comprehensive quality management: Developing and implementing a quality management framework for the developmental disability system in Ohio. Poster session presented at the 2007 New Freedom Initiatives Conference, Baltimore, MD.