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Lifeline Newsletter February 2006

The Lifeline Online is a newsletter of the Schiefelbusch Institute for Life Span Studies at the University of Kansas

Online, printable version and back issues.

Karen Henry, Editor
Drew Rosdahl, Assistant Editor

The Life Span Institute at the University of Kansas
1052 Dole Human Development Center
1000 Sunnyside Avenue
Lawrence, KS 66045-7555
(785) 864-4295 TDD
(785) 864-5051
lsi.ku.edu

In This Issue

In the News

Rud Turnbull on End-of-Life issues on Kansas Public Radio

Jane Wegner, Sertoma-Schiefelbusch Sertoma Camp

Articles

Storkel to develop model of normal and impaired word learning

Greenwood and Thiemann to test innovative digital speech recording and analysis device

Work Group for Community Health and Development attracts interest at World Health Organization conference

Centro Ann Sullivan del Peru co-hosts South American Special Education Forum with Council for Exceptional Children: Call for Papers

CASP Consultant Report

Parent to present public seminar on supported employment at Edwards campus

Ribbon cutting for disability-studies book section at Oread Books set for April 6

Kansas AAMR Spring Seminar on Environmental and Genetic Effects on Disability set for April 21

Merrill Conference on Measuring Language in Infancy

Assistive Technology for Kansans Report

Project Development

Institute Activities

The Centers and their inception dates

The Schiefelbusch Institute for Life Span Studies is a center of centers collectively dedicated to discovering research-based solutions for the challenges of human and community development, disabilities, and aging.

The Life Span Institute at Parsons 1956

Juniper Gardens Children's Project 1964

Kansas Mental Retardation and Developmental Disabilities Research Center 1967

Kansas University Center on Developmental Disabilities 1973

Research and Training on Independent Living 1980

Child Language Doctoral Program 1983

Beach Center on Disability
1988

Gerontology Center 1990

Merrill Advanced Studies Center 1990

Work Group for Community Health and Development 1990

Center for Physical Activity and Weight Management 2001

Center for Biobehavioral Neurosciences in Communication Disorders 2002

Friends of the Life Span Institute

Ross and Marianna Beach

Michael Cataldo

Gregorio Diaz

David and Margaret Ekerdt

Steve Fawcett and Kathleen McCluskey-Fawcett

Charles R. Greenwood and Judith J. Carta

Vance and Marilyn Hall

Betty Hart

Floyd and Frances Horowitz

Todd Little and Patty Hawley
 
Amy McCart and Dan Biles

James and Lee McLean

Virginia and Fred Merrill

Bob Mirman

Terry and Judi Paul

Mabel Rice

Todd and Cheryl Risley

Dick and Ruth Schiefelbusch

Steve and Carolyn Schroeder

Joe and Rita Spradlin

John T. Stewart III and Linda B. Stewart

Rud and Ann Turnbull

John and Patty Turner

Gary Waldron and Sunny Foster

Steve Warren and Eva Horn

Michael and Kathy Wehmeyer

Glen and Nancy White

David and Dee Yoder

Ed and Mary Ann Zamarripa
50 Years of Discovery logo

Mark your calendar for Friday, September 29, and Saturday, September 30, when we'll be celebrating and reflecting on our last 50 years of "doing science and doing good" as well as envisioning the future and our roles and responsibilities in it. You'll be getting more details in the mail soon. For more information or to register. contact Carolyn Thurman at cthurman@ku.edu.

In the News

Rud Turnbull was interviewed for a story that aired on Kansas Public Radio on Monday, March 6 on Medically-Assisted Feeding: Who Decides? The story was spurred by House Bill 2849, introduced in early February by Rep. Lance Kinzer. That bill attempts to clarify the roles of wards and guardians who are responsible for adults with "impairments" who are facing end-of-life issues. The bill would amend the state guardianship law to create a presumption in favor of treatment and standards and procedures for courts, guardians, and doctors to follow. Rud presented to the US Senate on this topic in April 2005 and worked with the Kansas Judiciary Council Task Force on Guardianship Reform in the summer of 2005. Rud is also the author of an article that just came out in the Journal of Religion, Disability, and Health (the focus of that entire issue was on end-of-life care for persons with disabilities). Rud's article is "What Should We Do for Jay? The Edges of Life and Cognitive Disability." - Mary Margaret Simpson

Children in giant flowerpotsThe winter 2005 edition of the Sertoman Magazine features the Sertoma-Schiefelbusch Communication Camp, directed by Jane Wegner in Camps Over! Rewind Camp! Wegner is also the director of the Schiefelbusch Speech-Language-Hearing Clinic that has collaborated with the Lawrence Sertoma Club for five years to bring together children with and without communication challenges for two weeks of fun and learning. For more information contact Jane Wegner.

Storkel to develop model of normal and impaired word learning

Holly Storkel, assistant professor of speech-language-hearing at the University of KansasHolly Storkel, assistant professor of speech-language-hearing, was awarded a highly competitive five-year $1.75 million NIH grant to further support her understanding of how children learn, process and organize words.

The five-year NIH grant, Word learning in children: normal development and language impairment, will allow Storkel to determine the factors that influence how children learn the words of the language and use this evidence to develop a comprehensive model of word learning in both normal and impaired language development.

Ultimately, this model will be used to construct clinical diagnostic and treatment techniques to improve word learning and minimize future deficits in language acquisition.

Four projects are planned with multiple studies in each project to independently examine the contribution of  sound, whole-word forms, and meaning to both simple associative learning and long-term integrative learning.

The resulting findings will provide the necessary evidence to build a comprehensive model of the learning of sound, word-form, and meaning representations that can be used to develop theoretically motivated clinical techniques.

Many children with language impairments have difficulty learning new words, yet the cause of this deficit is poorly understood, according to Storkel.

“Children who enter elementary school with vocabulary deficits have difficulty closing the gap with their peers, so effective word learning instruction is critical in preventing reading and academic failure.”

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Greenwood and Thiemann to test innovative digital speech recording  and analysis device
 
Charles GreenwoodKathy ThiemannCharles Greenwood, director  of the  Juniper Gardens Children’s Project, and Kathy Thiemann, assistant  research professor, will direct an 18-month study of an innovative digital speech  recording device.

The device can record and analyze the language environment of a  child to help parents and others understand how to encourage speech  development. The research will be supported by a $916,750 grant from Infoture,  Inc., a private,  Boulder, Colorado-based company.
 
The development  of the  device was inspired by the seminal research of Life Span Institute scientists Betty Hart and Todd Risley that demonstrated how the quality  of children’s earliest communication with family members influences  their  consequent intellectual development and school success.  
 
The slow  progress in understanding how young children  naturally  learn to talk  through their everyday interactions with  parents, family, and   caregivers, is because researchers lack a  powerful way to record and  capture what  children say, what is said to them by whom, and how both  change over time, according to Greenwood.

"Understanding how  children learn to talk at home is  important to understanding  all  aspects of learning to communicate, of typical and atypical development,  and of effective interventions that  may help children with delays  make greater  progress."

Learning to talk  and communicate is a  critical milestone of early childhood, and reaching  this milestone is necessary for children to be ready and successful in preschool  and kindergarten.
 
The study will test the small, non-intrusive speech recording device worn by the child in specially designed clothing. The device records child's vocalizations and amount of parent talk  to their child, analyzes the data and gives  immediate  graphical feedback. The study will examine the effectiveness  of the device, combined with brief parent education, in changing children's rate of learning to talk.

The long-term goal of  this work is to learn how parents can enhance child vocabulary, language  growth, and school readiness through communication at home.

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Work Group for Community Health and Development attracts interest at World Health Organization conference

Stephen FawcettThe Community Tool Box, an online resource developed by the KU Work Group for World Health Organization Collaborating Centre logoCommunity Health and Development to guide community groups and government agencies in reaching public health and development goals, may be adapted for use in parts of the Arab-speaking world.

Several participants at the first World Health Organization (WHO) Technical Meeting for WHO Collaborating Centres for Health Promotion in February told Work Group Director Steve Fawcett that the Toolbox was exactly what they needed.

The WHO Regional Office for the Eastern Mediterranean, that oversees WHO public health initiatives in 21 countries including Iraq, Afghanistan and the Sudan, approached Fawcett with the idea of adapting selected content of the Community Tool Box linguistically and culturally to train community leaders in health promotion.

The online Community Tool Box is already being used by groups and individuals in the Eastern Mediterranean region such as Ghazi Kayali, a health sciences instructor and researcher at the University of Balamand in Lebanon who calls CTB, "...a great resource for both teaching and conducting community--based programs," and Syed Abid Gilani, a social worker in Islamabad, Pakistan, who says that there is no training in health promotion in Pakistan.

The Work Group is one of the few U.S. organizations designated as an official World Health Organization collaborating center. A WHO collaborating center is designated by the Director-General of the World Health Organization as part of an international collaborative network to carry out activities in support of the international agency’s mandate for international health.

The Work Group collaborates with the Pan American Health Organization, one of WHO’s six regional offices, to expand the evidence base and build capacity for community health and development globally using the adapted resources of its Community Tool Box.

The Community Tool Box is a web site (http://ctb.ku.edu) that distills decades of the Work Group's research and practice to take groups—from grassroots to government—through planning, implementation, and evaluation of community health and development initiatives.

The CTB and its cultural variations link global users to resources that support sixteen “core competencies” including community assessment, strategic planning, advocacy, and social marketing.

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Centro Ann Sullivan del Peru co-hosts South American Special Education Forum with Council for Exceptional Children: Call for Papers

KU Life Span Institute affiliate Centro Ann Sullivan del Peru (CASP) and the Division of International Special Education and Services (DISES) of the Council for Exceptional Children will co-host the South American Special Education Forum, Making the Impossible Possible: A Better Life for Persons of Different Abilities and Their Families July 8-12, 2007 in Lima, Peru.

CASP, a school and research center located in Lima, is directed by KU graduate, honorary associate professor and Distinguished Service Citation awardee Liliana Mayo. Mayo’s approach, involving the family of an individual with disabilities in an educational process, and directing that process toward integration and employment, has earned Mayo and her colleagues such as Judith Le Blanc and CASP international recognition.

DISES promotes international communication, cooperation, and progress in education and services for children and youth who have disabilities and/or are gifted and talented -- across all age groups, from infancy through adulthood.

The conference’s stated purpose is to, “bring together researchers, practitioners and families from Latin America and the world to provide opportunities to share ideas around critical issues of mutual interest and forge collaborations for future work in special education.”

The conference will offer participants options for tours to different cultural and natural sites in Peru before and after the conference.

The deadline for submitting proposals for presentations is June 15, 2006. For more information, see Call for Papers.

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CASP Consultant Report

Stephen SchroederStephen Schroeder, professor emeritus and director of the Life Span Institute, has served CASP in many critical capacities during his tenure and continuing today. Most recently as a consultant, he reviewed this endeavor that has been so integrally part of and inspired by the knowledge and practice originating at the University of Kansas Life Span Institute. What follows are some excerpts from his report:

Coming to the Ann Sullivan Center (CASP) over the past 15 years has been one of my greatest joys as Director and now Emeritus Director of the LSI. Considering the very limited resources of time effort and treasure we have put into it, this has to be one of the greatest success stories in LSI’s history. The Partners of CASP who have been faithful benefactors over the years, the Christian Foundation, Lilian Fondes of Holland, Rotary Club of Sudbury Ontario, the Spader family, the Whitfields, the Sampsons, and the Stinemans, and others, also have reason to proud of their investment. This is a state-of-the-art program that grew up in humble circumstances, but now has a beautiful multi-purpose facility in Lima, Peru and educational programs for autism that are reaching out to many countries of Latin America and Europe and may be a model program for the U.S. eventually. Below I list a few features that to me make the CASP program unique among all programs for autism that I have seen the world over.

CASP is a comprehensive life span program from birth to death that is based on training parents, siblings, and other significant caregivers in a very positive educational model which is evidence-based. They use actual performance data for their decision-making. Many programs pay lip service but do not actually do this. The presentations I saw from the meeting of the Department Heads all contained quantitative data to demonstrate progress.

The Supported Employment Program. This program is unique. Supported Employment began in the U.S. about 30 years ago, but I have not seen a single program in the U.S. where all of its employees work in competitive employment for a competitive wage that supports their family. In the U.S. only a small fraction of people with disabilities actually are employed full-time at a competitive wage. There are probably a variety of reasons for this. While the U.S. has an ADA Act, it does not have a government policy of “Social Responsibility” as Peru. This has allowed CASP graduates a chance to get a toe in the door and demonstrate the quality of their work. Employers like Wong’s Superstore now hire them because of the superior quality of their work rather than their handicapping condition. In fact, Mr. Wong at the School of Parents meeting committed to 100 positions for CASP at his stores.

The School of Families has also grown. CASP now has a School of Parents, a School of Siblings, and is developing a School of Babies, an early intervention program for babies at risk for autism. They are retooling their infant stimulation program to take into account new research on risk markers for autism in infancy. This is an exciting new development in which CASP could be come a leader in the prevention of autism, a national strategy which would be much more cost-effective for Peru.

CASP’s development of collaborations with the biomedical community has really taken off. Thanks to Dr. Georgina Peacock, a Fellow in Developmental Pediatrics at KUMC who spent three months a CASP with her family last year, the Department of Pediatrics at Cayetano Univesitaria Heredia wants to send all of their pediatric residents to CASP for training rotations. Peru does not have a board-certified specialty in Developmental Pediatrics like the U.S. Thus all disability cases are handled by General Pediatricians who are untrained in this specialty. This is a great development with a long-term impact on Peru and Latin America. We want to fund Dr. Sicilia, a Professor of Pediatrics, at Cayetano University Hospital, to come to KUMC for training in Developmental Pediatrics.

One of the most impressive developments of CASP on the international front is the maturing of their program in Rio de Janeiro. The leader of this program is a psychologist, Dr. Maryse Suplino, a very dynamic and dedicated leader. When I visited her school in 1997, she had four children and practically no school materials. Today she has 60 children in her school, she is building her own building, and she plans to expand her school to 120 children next spring. She has been able to do this by getting the Brazilian government to subsidize every family with a child with developmental disabilities at the rate of $200 per month. So her families have government funding to support their education, much like the U.S. Once again, this is just amazing.

Editor’s note: Dr. Peacock and her family will be returning to CASP this summer from June through August. As described above, Peacock continue to establishing rotations in developmental-behavioral pediatrics at CASP for the pediatric residents at Cayetano University Hospital, Peacock will help to Georgina Peacock, MD, husband Garrett and family with Liliana Mayo, director of CASPcoordinate the creation of a medical record for each CASP student with the assistance of four Kansas City-area pediatricians.  In addition, she will try to document the immunization status of each child and staff member and look into the feasibility of creating an immunization clinic. 

Peacock will mentor a visiting medical student from KU who is doing a comparative study of special education in Kansas and Peru as well as a developmental-behavioral fellow who will conduct some developmental assessments of some of the students. Dr. Peacock  give lectures to the parents, staff at the school on topics of greatest interest.

Director Liliana Mayo with Georgina Peacock, M.D., husband Garrett, and family at CASP in 2005.

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Parent to present public seminar on supported employment at Edwards campus March 29

Wendy Parent, assistant director of the KU Center on Developmental Disabilities will explain best practices in supported employment for people with cognitive disabilities, Wednesday, March 29, at 7:00 pm on the KU Edwards Campus 12600 Quivira, Room 164. The free public seminar is hosted by the Autism Society of Johnson County.

Parent, an expert and researcher in vocational training and supported employment, will discuss several successful research-based programs that have been established around the country.

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Ribbon cutting for disability-studies book section at Oread Books set for
April 6

Dot NaryLife Span Institute doctoral student Dot Nary always thought that there should be a disability studies section in the Oread Bookstore in the Kansas Union. She found that Lisa Eitner, general book supervisor at Oread Books, was enthusiastic about the idea.

The dedication of a section for books on disability studies and the disability rights movement will be 2 to 4 p.m. Thursday, April 6, in Oread Books in the Kansas Union on the University of Kansas campus in Lawrence.

A brief program at 2:30 p.m. will feature a ribbon cutting, speakers, a literature table and door prizes. Fifteen KU departments and organizations, including the Life Span Institute and several other Life Span affiliated centers, are co-sponsoring the event, which is free and open to the public.

Typically, bookstores designate sections devoted to books on group movements and issues, such as women and racial minorities, but it is less common for books on disability to be shelved together.

“It is important that we recognize the importance of the disability rights movement and of disability studies as an area of scholarship. This recognition can serve to promote greater awareness of the contemporary experience of disability in society and contribute to social change,” said Dot Nary, doctoral student in applied behavioral psychology and co-coordinator of the event.

April 6 was chosen for the ribbon cutting to honor an event now considered by many to be the political coming-of-age of the disability rights movement. During the first week of April in 1977, people with disabilities began a 25-day sit-in at the federal building in San Francisco, the longest such event ever held in a U.S. federal building. A group of 120 activists with a variety of disabilities protested the fact that regulations to implement Section 504 of the 1973 Rehabilitation Act had not yet been issued, thereby delaying discrimination remedies guaranteed by this federal law. Their protest was successful as 504 regulations were signed into law on April 28, 1977, without proposed changes that would have significantly weakened this landmark legislation.

Speakers at the event will include Kathryn Nemeth Tuttle, associate vice provost for Student Success; Glen White, professor of applied behavioral science, who teaches an undergraduate course on independent living for people with disabilities; and a representative of AbleHawks, a campus group for KU students with disabilities.

Cosponsors:
AbleHawks
Assistive Technology for Kansans
Beach Center on Disability
Counseling and Psychological Services
Department of Applied Behavioral Science
Department of Special Education
Disability Resources/Academic Achievement & Access Center
Kansas Audio-Reader Network
KU Center for Research on Learning
KU Professionals for Disability
KU Workgroup on Community Development and Health Promotion
Life Span Institute
Multicultural Resource Center
Research and Training Center on Independent Living (RTC/IL)
School of Social Welfare
Student Health Services

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Kansas AAMR Spring Seminar on Environmental and Genetic Effects on Disability set for April 21

The Kansas Chapter of the American Association on Mental Retardation and the Kansas University Center for Developmental Disabilities are co-sponsoring a seminar on Environmental and Genetic Effects on Disability on Friday, April 21 from 10 a.m.-2:30 p.m. at the Dole Institute of Politics. Students, families, teachers, practitioners and service providers are encouraged to attend.

Michelle Gagnon, Director, American Association on Mental Retardation (AAMR) Environmental Health Initiative, will speak on Toxic Exposure:  Preventing and Reducing Impact. This session will focus on how service providers, parents, and individuals with disabilities can use primary and secondary measures to prevent exposures and reduce toxic materials at work and home. She will also discuss organizations that are working toward reducing toxic exposures and how you can get involved in supporting this important initiative. Resources, checklists, and informational websites will be provided to share elements related toxic exposure for people of all ages. 

Matthew J. Stowe, L.D., Research Assistant Professor and Principal Investigator with the Beach Center on Disabilities, will present on Genetic Research:  What it Means for Persons with Disabilities and their Families. Stowe is the principal investigator of a grant from the National Human Genome Research Institute. This session provides an overview of what we know and do not know about the role of genetics in health and disability, discuss possible implications – hope for and fears of – genetic research for persons with disabilities and their families, and recommend steps that members of the disability community can take to foster benefits and address the potential harms of genetic research, both for young children, youth, and adults.  Genetic technologies are increasingly becoming available to test for the presence of certain genes, improve diagnosis and treatment, prevent disability, and improve health.  Yet, human genetic research has also generated concern about discrimination, privacy, eugenics, health care costs, and other quality of life issues for persons with disabilities. 

Ample free parking is available.

Registration Fee:  Registration by April 14th is $20.00 (including box lunch). Late and on-site registration fee is $30.00.  Student registration is $10.00.  Certificates of attendance will be provided. Registration form.

Seminar Questions:  Contact Jennifer Lattimore (785-864-3128 or lattimor@ku.edu) if you have questions or need additional information

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Merrill Conference on measuring language in infancy

Nineteen research scholars from the U.S. and Canada shared the latest research on infant language acquisition September 15-17, in Mission Temple Palms, Phoenix. The conference was supported by KU’s Merrill Advanced Studies Center and the National Institute of Child Health and Human Development.

Infant Pathways to Language: Methods, Models, and Research Directions was organized by John Colombo, chair and professor of psychology at KU, and Peggy McCardle, associate branch chief; language, bilingual, and biliteracy development and disorders, NICHD, with  Mabel Rice, director of the Merrill Center, and Fred and Virginia Merrill Distinguished Professor of Advanced Studies, and Director, Child Language Program.

Papers from the conference will be published as Measuring Language in Infancy, with editors John Colombo, Peggy McCardle and Lisa Freund (Lawrence Erlbaum Associates).

Complete agenda and participants.

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Assistive Technology for Kansans Report

woman on adapted tractorThe Life Span Institute's Assistive Technology for Kansans project (ATK) co-sponsored the AT (Assistive Technology) Expo 2006 in Topeka on March 27 & 28th with Kansas Infant Toddler Services, Kansas Developmental Disabilities Council, and Life Span's Kansas Inservice Training Program (KITS), Kansas Community Personal Attendant Services, K-PASS, Kansas Equipment Exchange (KEE).

The event had nationally recognized speakers on AT in the areas of education, employment and community living and a large Expo Hall with hands-on demonstrations in technology from adapted farm machinery to positioning equipment to specialized software and state-of-the-art wheelchairs.  

In related news, the Kansas Community Personal Attendant Services and Supports with Maximum Consumer Control (K-PASS) grant, directed by Parsons principal investigator Sara Sack along with Simmons and others, is preparing to field test the K-PASS Self-Direction Toolkit to consumers and case managers.

The purpose of the grant is to improve methods for self-direction of personal assistance services by people with developmental disabilities. The grantees will work with people with developmental disabilities and their families to identify barriers to people directing their own services and how model programs could operate.

Sack and Simmons are also looking into expansion of the regional network for Kansas Equipment Exchange. The Assistive Technology for Kansans Project has established an Interagency Equipment Loan System that contains a variety of devices that people in Kansas can borrow on a trial basis, before they purchase equipment for themselves. The Kansas Equipment Exchange offers reconditioned durable medical equipment (DME), such as wheelchairs and lifts, for Kansans who meet the guidelines. ATK also maintains an Equipment Bulletin Board where consumers may search for a broader range of items that they want to buy or post items they have for sale.

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Beach Student Wins Research Award

Luchara Sayles Wallace, a doctoral student at the Beach Center on Disability, was one of two graduate students at the University of Kansas who won research awards at a Graduate Student Research Summit held at the state Capitol in Topeka on March 8.

Wallace won a $500 scholarship from Kansas Bio, a consortium of biosciences companies and organizations in the state that includes the Kansas City Area Life Sciences Institute. Her qualitative research project studied how support brokers can get the most out of the self-determination approach for individuals with disabilities dealing with the HCBS Medicaid fund option. She was one of nine KU graduate students who were chosen to present their research at the Summit. Other KU projects were in such areas as pharmaceutical chemistry, electrical engineering, and geology.

A first-year doctoral student in Special Education, Wallace is a native of North Carolina.

- Mary Margaret Simpson, Editor, Beach Center on Disability

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Project Development

New Grant Submission Guidelines for NIH

Jessica Black, Grants Monitor

The National Institutes of Health (NIH), under the Department of Health and Human Services, will soon require electronic submission via grants.gov.  The website is a clearinghouse for funding agencies for 26 different government agencies.  They will join the Department of Education and the National Science Foundation who have required similar guidelines on grants.gov.  Investigators who would like to submit proposals to NIH must register with the eRA commons prior to submission.  If you would like to register contact Jessica Black at jessica@ku.edu or at 785.864.0597.  They have created a listserv that is available for investigators.  It will provide periodic updates to the electronic grant application program.  Investigators are encouraged to subscribe to the listserv using instructions available hereA timeline is also available that illustrates important dates in the transition to this new program. Also specific requests or questions can also be addressed to Jessica Black.

February Project Development

Paul Diedrich, Associate Director for Project Development

Past Submissions not Previously Reported

1. Jean Ann Summers and Ann Turnbull submitted a new, five-year subcontract “Center on High Quality Personnel in Inclusive Preschool Settings” to the University of Connecticut, prime contractor to DE/OSERS, on January 31, 2006.

2. Richard Saunders, Muriel Saunders, James Sherman, Nancy Brady, Kathy Thiemann and Steven Warren, in collaboration with Lesley Olswang (University of Washington), resubmitted the five-year competing continuation of the program project “Communication of People with Mental Retardation” to NICHD on February 1, 2006.

3. Steve Barlow, in collaboration with Raj Pahwa, William Brooks and Kelly Lyons at KUMC, and Greg Turner at Central Missouri State University submitted a new, five-year proposal “Reorganization of Parkinsonian Speech Following STN DBS” to NIDCD on February 1, 2006.

4. Yolanda Jackson and Todd Little submitted a new, four-year proposal “Testing Determinants of Resilience:  Child Maltreatment and the Development of Adaptive Behavior” to NIMH on February 1, 2006.

5. Steve Fawcett and Jerry Schultz submitted a new, five-year proposal “Strong Coalitions for Community/System Change and Reduced Risk for Substance Abuse” to NIDA on February 1, 2006.

6. Anne Choi submitted a new, one-year proposal “Elderly Korean Immigrants, Social Networks and Health Care Service Utilization” to NIH on February 1, 2006.

7. Chris Smith and Tom Skrtic submitted a new, three-year proposal “Organization Structure, Culture and Innovation in Head Start Agencies” to NSF on February 2, 2006.

Six Field Initiated Projects (one research and five development) were submitted to DE/NIDRR on February 6, 2006:

8. Mary Abbott and Jay Burzhardt’s research project “An Experimental Study of the Efficacy of the LAMP (Language Arts Multisensory Program” for Adult Students Reading at First Grade Level or Below;

9. Linda Heitzman-Powell and Jay Buzhardt’s development project “Combining Technologies to Maximize Outcomes:  Online and Telemedicine Training Program of Parents of Children with Autism”;

10. Wendy Parent and Michael Wehmeyer’s development project “Jobs with a Future:  An Individually Directed Creative Careers Model to Promote Employment”;

11. Sara Sack’s development project “Creating Electronic Tools and Identifying Management Strategies to Improve the Effectiveness of Equipment Reutilization Efforts”;

12. Sara Sack’s development project “Supporting Youth and Young Adults in Increasing Self-Direction of Personal Care Assistant Services”; and

13. Muriel and Richard Saunders’ development project “Development of Two Products Essential for Evidence-based Practices with Adaptive Switches”.

14. Judy Carta submitted her third-year continuation “Promoting and Supporting Breastfeeding in Adolescents” to KUMC (PI:  Karen Wambach), prime contractor to NINR on February 13, 2006.

15.  Joseph Donnelly, Rik Washburn, Bryan Smith, Richard Saunders, Muriel Saunders, Debra Sullivan, Cheryl Gibson and Matthew Mayo resubmitted their two-year proposal “Effective Strategies for Weight Loss in People with Mental Retardation” to NIDDK on February 15, 2006.

16. Mabel Rice resubmitted her five-year subcontract “Autism:  Social and Communication Predictors in Siblings” to Kennedy Krieger Institute, prime contractor to NIH, on February 16, 2006.

17. Charles Greenwood and Kathy Thiemann submitted an eighteen-month supplement for their recently funded proposal “The Efficacy of a Comprehensive Speech Recording Device Intervention on the Language Environment and Early Language Learning of Typically Developing Infants and Toddlers” to Infoture on February 24, 2006.

18. Judith Carta, Charles Greenwood and Dale Walker, in collaboration with Howard Goldstein and Juliann Woods at Florida State University and Scott McConnell at the University of Minnesota, submitted a new, five-year “Technical Assistance Center on Evidence-based Practices to Improve Early Literacy and Language Development of Young Children with Disabilities” to DE/OSERS/OSEP on February 27, 2006.  

19. Joseph Donnelly, Bryan Smith, Leon Greene, Ric Washburn, Debra Sullivan, Cheryl Gibson and Matthew Mayo submitted their fifth-year, non-competing continuation “Prevention of Obesity in Children with PAAC” to NIDDK on March 1, 2006.

20. Mabel Rice submitted her tenth-year, non-competing continuation “Training Researchers in Language Impairments” to NIDCD on March 1, 2006.

21. Mabel Rice, in collaboration with Steve Zubrick and Catherine Taylor @ Curtin University, Australia and Shelley Smith @ University of Nebraska Medical Center, submitted their competing continuation “Twins and Singletons with Specific Language Impairment” to NIDCD on March 1, 2006.

22. Chris Smith submitted a new, fifteen-month proposal “Developing a Quality Management Strategy for the Ohio Quality Assurance Systems Change Initiative” to the Ohio Department of Mental Retardation and Developmental Disabilities on March 3, 2006.

23. Chris Smith submitted a new, eighteen-month proposal “Developing a Performance Measurement Strategy for the Ohio Quality Assurance Systems Change Initiative” to the Ohio Department of Mental Retardation and Developmental Disabilities on March 3, 2006.

24. Joseph Donnelly resubmitted a one-year proposal “8th Annual Conference on the Treatment and Prevention ob Obesity” to CDC on March 6, 2006.

Upcoming Proposal Submissions

1. Joseph Donnelly, Bryan Smith, Ric Washburn, Leon Greene, Debra Sullivan, Cheryl Gibson and Matthew Mayo will resubmit their five-year proposal “Prevention of Obesity in YMBA After School Programs” to NIDDK on March 15, 2006.

2. Michael Wehmeyer, David Lindeman and Chet Johnson will submit their, thirty-fifth year, non-competing continuation “Kansas University Center on Developmental Disabilities (KUCDD)” to HHS/ACF/ADD on March 17, 2006.

New Awards (not previously funded) Information

1. Joe Donnelly received a new, one-year subcontract “A Physical Activity and Nutrition Program for Pre-Kindergarten Children” from KUMC, PI Cheryl Gibson, prime contractor to Blue Cross and Blue Shield of Kansas City, that began August 1, 2005.

2. Steve Warren and Nancy Brady, in collaboration with Marc Fey @ KUMC (prime contractor) and Paul Yoder @ Vanderbilt received a new, five-year award “Effects of Intensity of Early Communication Intervention” from NICHD, which began August 1, 2005.

3. Joe Donnelly received a new, one-year subcontract “Cardiorespiratory Fitness in Alzheimer’s Diseases” from KUMC, PI Jeffrey Burns, prime contractor to NIA, that began August 15, 2005.

4. Susan Bashinksi received a new, three year subcontract “Outcomes for Children who are Deaf-Blind after Cochlear Implantation” from Western Oregon University (prime contractor to DE), that began October 1, 2005.

5. Janet Marquis received a new, nine-month award “School Readiness Project” from the Ks DE, that began October 1, 2005.

6. Sara Sack received a new, two-year award, Assistive Technology for Kansans Project (ATKP) from the US DE, which began October 1, 2005.

7. Joe Donnelly received a new, one-year subcontract “The Health Kids Project” from KUMC, PI Cheryl Gibson, prime contractor to the YMCA of Greater Kansas City, that began November 1, 2005.

8. Chris Smith received a new, eighteen-month proposal “Evaluation of ODMR/DD’s Quality Assurance/
Quality Improvement in Home and Community Based Services” from the Ohio Department of Mental Retardation and Developmental Disabilities, that began January 1, 2006.

9. Ric Steele received a new, four-year award “Effectiveness of a Treatment for Pediatric Obesity Research” from HHS/HRSA, that began January 1, 2006.

10. Charles Greenwood and Kathy Thiemann received a new, nineteen month award “The Efficacy of a Comprehensive Speech Recording Device Intervention on the Language Environment and Early Language Learning of Typically Developing Infants and Toddlers” from Infoture, that began on January 31, 2006.

Institute Activities

Presentations

Mabel Rice, Fred and Virginia Merrill Distinguished Professor of Advanced Studies, organized a featured symposium for the 2006 Annual Meeting of the American Association for the Advancement of Science, In Search of Genes that Influence Language: Phenotypes and Molecules. Rice’s presentation was Specific Language Impairment as an Inherited Condition. Other members of the panel were Simon Fisher, Oxford, England,; Helen Tager-Flusberg, University of Massachusetts Boston, and Shelley Smith, University of Nebraska Medical Center, Omaha. 

Freeman, R. (2005). The Kansas Institute for Positive Behavior Support: Encouraging multidisciplinary collaboration and team-based learning strategies. Annual Statewide Children’s Mental Health Conference, 2005. Wichita, KS.

Freeman, R. (2005). Positive Behavior Support: Team-based Strategies for Supporting Children. “Our combined voices: Making a difference for children with disabilities.” Families Together Conference. Wichita, KS.

Freeman, R. & Kimbrough, P. (2005). Staff development and online instruction in positive behavior support. Wichita, KS.

Freeman, R., Kincaid, D., & Riffel, L. (2005). Using the pbis.org online library to access PBS information. School-wide PBS Implementation Forum for State and District Level Leadership Teams. Rosemont, IL.

Freeman, R., Wessendorf, S., Leucking, S., & Warner, A. (2005). Partnering with families, mental health, community partners/agencies. School-wide PBS Implementation Forum for State and District Level Leadership Teams. Rosemont, IL.

Publications

Moore, M., Freeman, R. Johnston, C. D. (2005). Building a collaborative state-wide planning network in positive behavior support (PBS) for community-based services. Association for Positive Behavior Support Newsletter, 3(3), 1-4.

Storkel, H. L., & Maekawa, J. (2005). A comparison of homonym and novel word learning: The role of phonotactic probability and word frequency. Journal of Child Language, 32, 827-853.

Grants Review

Richard Saunders served as a grant reviewer January 20-22 on the Social and Psychological Review Panel in Toronto, Canada, for the Alzheimer's Society of Canada.