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June 2004

News for the investigators, staff and associates of the Schiefelbusch Institute for Life Span Studies

Karen Henry, editor kahenry@ku.edu

The Life Span Institute at the University of Kansas

1052 Dole Human Development Center

1000 Sunnyside Avenue

Lawrence, KS 66045-7555 (785) 864-4295 TDD (785) 864-5051

Back issues at LSI web site

Submit your presentations: A calendar and archive of seminars, presentations and training by and of interest to Life Span investigators begin at http://www.lsi.ku.edu/lsi/internal/seminars/index.htm. Send your submissions to jessica@ku.edu.

Contents

Features

World Health Organization to designate Work Group for Community Health and Development as WHO collaborating center

RTCIL's White and Nary produce documentary on Ed Roberts, founder of the independent living movement

Ann Turnbull reflects on role of family in family research in 2004 AAMR keynote

Life Span in the news

Honors

Publications

Presentations

Other professional activities

Central Office News & Announcements

Human Resources

Project Development June update

Life Span in the news

Kansas City business and scientific leaders are backing Joe Donnelly 's plan for a regional weight-loss and management coordinating agency, the Center for Physical Activity, Nutrition and Weight Management. Donnelly, director of the KU's Center for Physical Activity and Weight Management, has support from the Greater Kansas City Community Foundation and the Kansas City Area Life Sciences Institute. See story at: http://kansascity.bizjournals.com/kansascity/stories/2004/05/31/story6.html .

The makers of dairy products are touting dairy as the new weight loss sensation based on a few early promising studies. Not so fast, says Center for Physical Activity and Weight Management Center Director Joe Donnelly . Donnelly, who is conducted a study of dairy's role in weight management, told the Wall Street Journal that the claim is not a “slam dunk” yet. See story at: http://www.twincities.com/mld/twincities/living/health/8902650.htm?1c .

Retirement is a fluke of the 20th century and can be destructive to active, healthy people according to Gerontology Center Director David Ekerdt in the June 14 U.S. News & World Report article, Today's Retirement Journey . Still, Ekerdt encourages lifelong savings habits and spoke to Missouri high school students about planning for retirement years. See full story at http://archive.columbiatribune.com/2004/jun/20040607life001.asp .

World Health Organization to designate Work Group for Community Health and Development as WHO collaborating center

The Work Group for Community Health and Development, directed by Stephen Fawcett , will soon be an official United Nations World Health Organization collaborating center called University of Kansas/WHO Collaborating Centre for Community Health and Development.

A WHO collaborating center is designated by the Director-General of the World Health Organization to form part of an international collaborative network to carry out activities in support of WHO's mandate for international health.

The Work Group will collaborate with PAHO (Pan American Health Organization), one of WHO's six regional offices, to build capacity for community health and development globally using the expanded resources of the Community Tool Box (CTB).

The Community Tool Box (CTB) is a web site that distills decades of the Work Group's research and practice to take groups – from grassroots to government - through planning, implementation and evaluation of community health and development initiatives.

The Work Group will adapt the existing CTB content to Latin and South American languages and culture over the next four years to be called “Community Toolbox of the Americas ”. The designation can be renewed at the end of that time.

The CTB of the Americas will links to resources for users to acquire sixteen “core competencies” including, community assessment, strategic planning, advocacy, and social marketing.

Site users will also be able to call up more in-depth support for developing a strategic plan or evaluation plan, and read case examples that reflect culturally grounded work in different topic areas such as infant and child health, HIV/AIDS, nutrition, reproductive health, sanitation, or water quality.

The Work Group will be in select company as a WHO/PAHO collaborating center joining such institutions as Yale University , Johns Hopkins University and the Centers for Disease Prevention.

The Work Group plans to officially launch the new center later this year.

RTCIL's White and Nary produce documentary on Ed Roberts, founder of the independent living movement

Dot Nary, RTCIL Training Director

Ed Roberts: His Words, His Vision is a nine-minute documentary based on a speech delivered by Roberts to disability activists in Kansas City in 1981.

Roberts, who relied on an iron lung due to a childhood bout with polio, was one of the first students with a severe disability to live at the University of California-Berkeley in the 1960s.

His efforts to live in the community resulted in the establishment of an “independent living center” in Berkeley to advocate for the rights of people with disabilities to be fully participating members of the community.

This center became the foundation of a national civil rights movement for people with disabilities, and spawned the establishment of similar centers across the nation that serve as disability resource centers for people with disabilities and their communities.

The video features excerpts from Roberts' speech, interspersed with contemporary photos of people in the disability rights movement taken by nationally known photographer Tom Olin.

The video is a product of the Research and Training Center on Independent Living (RTCIL) under the Life Span Institute. The executive producer of the video is RTCIL Director Glen White , and the producer is RTCIL Training Director Dot Nary . Mark Crabtree of KUCE edited the video, and Bryan “Kip” Haaheim of the KU Music and Dance Department provided original music. The video packaging includes an endorsement by Congressman Jim Langevin (RI), one of several members of Congress who uses a wheelchair.

To purchase a copy of the video, contact the RTCIL at 785 864-4095.

Ann Turnbull reflects on role of family in family research in 2004 AAMR keynote

Mary Margaret Simpson, Editor, Beach Center on Disability

Beach Center Co-Director Ann Turnbull presided as president over the 128th annual meeting of the American Association on Mental Retardation held June 1-6 in Philadelphia . Her presidential address, “Wearing Two Hats: Morphed Perspectives on Family Quality of Life,” focused on her dual roles as researcher and mother of three children, including an adult son with disabilities.

In her address, which served as the keynote for the meeting, Turnbull summarized Beach Center research projects that led to a groundbreaking measurement tool to conceptualize and measure family quality of life. She described the influence of her family experiences in shaping her work on family theory and research, particularly her research on family quality of life.

“As I have reflected on the process of wearing two hats, I realize that I have ended up with a single hat – a morphed one – that combines my family and professional perspectives in ways that create a richer form for my thinking, research and teaching,” she said. “I hope that my morphed perspectives will illuminate important next steps that professionals and family members might take to increase the likelihood that families throughout the world who have a member with an intellectual disability will have genuine opportunities to experience and sustain family quality of life.”

Institute Activities

Honors

Dorothy Nary received the Region VII Advocacy Award “for her dedication to promoting and protecting the rights of all people with disabilities and the advancement of the independent living philosophy throughout Region VII” from the National Council on Independent Living in June.

Ann Turnbull completed her term as President of the American Association of Mental Retardation. Other Past Presidents of AAMR include Steven Warren (2001-2002), and Rud Turnbull (1985-1986).

Rud Turnbull received the Gene Budig Professorship in Special Education for 2004-2005.

Publications

Storkel, H.L. & Young, J.M. (2004). Homonomy in the developing mental lexicon. In A. Brugos, L. Micciulla, & C. E. Smith (Eds.), Proceedings of the 28th Annual Boston University Conference on Language Development, Volume 2 (pp. 577-584). Somerville , MA : Cascadilla Press.

Storkel, H.L. (2004). Do children acquire dense neighborhoods? An investigation of similarity neighborhoods in lexical acquisition. Applied Psycholinguistics , 25, 201-221.

Yoder, P.J., & Warren , S.F. (2004). Early predictors of language in children with and without down syndrome. American Journal on Mental Retardation, 109, 285-300.

Zarcone, J.R. , Lindauer, S.E., Morse, P.S., Crosland, K.A., Valdovinos, M.G., McKerchar, T.L. , Reese, R.M. , Hellings, J.A. , & Schroeder, S.R. (2004). Effects of risperidone on destructive behavior of persons with developmental disabilities: III. Functional analysis. American Journal on Mental Retardation, 109, 310-321.

Presentations

Bashinski, S. , & Wehmeyer, M. (2004, June). Access to the General Education Curriculum for Students with Mental Retardation. Poster presented at the 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Brady , N.C. , Steeples, T. , & Fleming, K. (2004, June). Communication Initiations and Repairs in Children with Severely Limited Expressive Language. Symposium for Research on Child Language Disorders, Madison , WI .

Doughty, A. H. , Williams, D. C. , & Saunders, K. J. (2004, May). Establishing within-subject procedures for studying sustained attention in persons with mental retardation. Poster presented at the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Doughty, A.H. , Williams, D.C. , & Saunders, K.J. (2004, May). Establishing within-subject procedures for studying sustained attention in persons with mental retardation. Association for Behavior Analysis, Boston , MA .

Doughty, A.H. , Williams, D.C. , & Saunders, K.J. (2004, May). Human transitive inference using verbal and nonverbal procedures. Association for Behavior Analysis, Boston , MA .

Doughty, A.H. , Williams, D.C. , & Saunders, K.J. (2004, May). Human transitive inference using verbal and nonverbal procedures. Poster presented at the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Fey, M. , Warren , S.F. , Brady , N.C. , Bredin-Oja, S.L., Fairchild, M., Finestack, L., & Sokol, S.B. (2004, June). The Effects of Parent Responsivity Education and Prelinguistic Milieu Teaching on Children with Down Syndrome. Symposium for Research on Child Language Disorders, Madison , WI .

Greenwood , C. R. (2004, May). The Juniper Gardens Children's Project: Lessons Building a Community Laboratory for Intervention Studies . Distinguished Scientist Lecture Series, Kennedy-Krieger Institute, Baltimore .

Haag, S. S., Anderson, C. M., Williams, D. C. , & Saunders, K. J. (2004, May). Establishing control of self-stimulatory responding by an antecedent stimulus using punishment. In Cynthia M. Anderson (Chair), The use of stimulus control to enhance intervention efficacy. Symposium conducted at the meeting of the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Haag, S.S., Anderson , C.M., Doughty, A.H. , Williams, D.C. , & Saunders, K.J. (2004, May). Establishing control of self-stimulatory responding by an antecedent stimulus using punishment. Association for Behavior Analysis, Boston , MA .

Johns, E., Swenson, S., Turnbull, R. , & Ward, N. (2004, June). Information and Wellness. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Kemper, S. delivered a series of lectures as the University of La Laguna, Tenerife, Spain on "Language and Aging" at the invitation of Prof. Manuel Carrieiras and the Program in Cognitive Neurosciences, June 7-11.

Mikesic, B., & Nary, D. (2004, May). Full Participation in Disability Advocacy-Independent Living as Vehicles for Change. ADA Symposium sponsored by the Great Plains ADA/IT Center, Kansas City, MO.

Mills, Steven C. (2004, June). Authentic Assessment of Technological Fluency: Computer Assessment and Tutorial Online. A paper session presented at the Association for Educational Communications and Technology Summer Conference, University of North Texas , Denton , TX .

Mills, Steven C. (2004, June). Diagnosing Technological Fluency: The Online Computer Assessment and Tutorial. A poster session presented at the National Educational Computing Conference, New Orleans , LA.

Mills, Steven C. (2004, June). Technology Rich Classrooms: If You Build Them, Will They Learn? . A roundtable discussion session presented at the National Educational Computing Conference, New Orleans , LA.

Mills, Steven C. (2004, June). The Schools Technology Built: Student Satisfaction and Achievement in a Virtual High School. A paper session presented at the Association for Educational Communications and Technology Summer Conference, University of North Texas , Denton , TX .

Nary, D. (2004, March). The University of Kansas RTC/Il and Project Data. Emerging Disability and Employment Outcomes Policy Summit . Institute for Community Inclusion and the National Institute on Disability and Rehabilitation Research, Washington , DC .

Palmer, S. (2004, June). Children's Inclusive Pathways Through Education. Poster presented at the 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Palmer, S. , Copeland, S., Wehmeyer, M. , & Thompson, J. (2004, June). Evidence-Base Practices in Education. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Paradis, J., Rice, M. , Richman, A. , & Coutu, J. (2004, June). Production and Comprehension of Tense Morphology by Children Learning English as a Second Language and English-speaking Children with SLI. Symposium for Research on Child Language Disorders, Madison , WI .

Perdue, A. N., & Storkel, H.L. (2004, June). Phonotactic Probability and the Peabody Picture Vocabulary Test-3. Symposium for Research on Child Language Disorders, Madison , WI .

Peyton, R. T. , Born, D. G. , & Williams, D. C. (2004, May). Match-to-sample as a screening tool and research measure for dementia. In Linda A. LeBlanc (Chair), Basic and applied research on assessment and treatment with elders . Symposium conducted at the meeting of the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Poston, D. , Mannan, H. , & Wang, M. (2004, June). Family Quality of Life. Poster presented at the 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Saunders, M. , & Saunders, R. (2004, May). Comparison of three methods of preference testing in people with profound multiple impairments. Poster presented at the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Schalock, R., Verdugo, M., & Wang, M. (2004, June). Personal Wellbeing Includes Health and More: An International Quality of Life Perspective. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Smith, P. (2004, June). Changing Attitudes of Professionals in Training. Poster presented at the 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Smolik, F. (2004, June). MLU-based Age Recentering: A Tool for Studying Developmental Trajectories. Symposium for Research on Child Language Disorders, Madison , WI .

Smolik, F. (2004, June). Structure of MLU: Tense Morphology as a Better Predictor of MLU Than Non-tense Morphology. Symposium for Research on Child Language Disorders, Madison , WI .

Stewart, K. L. , Suchowierska, M. M. , Chaney, L. , & Saunders, K. (2004, May). Adults with mental retardation demonstrate recombinative generalization in a constructed spelling task. In K. Saunders (Chair), Recombinative generalization in spelling and reading. Symposium conducted at the meeting of the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Stowe, M. , & Turnbull, R. (2004, June). Emerging issues in IDEA reauthorization. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Suchowierska, M. M. , Stewart, K. L. , & Saunders, K. (2004, May). Recombinative generalization in constructed spelling by preschool children. In K. Saunders (Chair), Recombinative generalization in spelling and reading. Symposium conducted at the meeting of the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Thompson, J., Hughes, C., Tasse, M., Wehmeyer, M. , Schalock, R., Bryant, B., Rotholz, D., Campbell, E., Silverman, W., & Craig, E. (2004, June). The Supports Intensity Scale. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Thompson, J., Schalock, R., Tasse, M., Silverman, W., Wehmeyer, M. , Rotholz, D., Hughes, C., Craig, E., Campbell, E., & Bryant, B. (2004, June). The SIS: A Tool to Measure Support Needs. Poster Presented at the 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Turnbull, A. (2004, June). Wearing Two Hats: Perspectives on Family and Quality of Life. Presidential Address at the 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Turnbull, A. , & Poston, D. (2004, June). Working in Partnership With Families to Enhance Quality of Life. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Turnbull, A. , & Poston, D. (2004, June). Working in Partnership With Families to Enhance Quality of Life. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Warren, S. (2004, June). Treatment Efficacy as a Standard for Newborn Screening of Disorders Associated with Intellectual Disabilities. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Warren , S.F. (2004, June). Treatment Efficacy as a Standard for Newborn Screening of Disorders Associated with Intellectual Disabilities. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Wehmeyer, M. , Palmer, S. , LaChapelle, Y. (2004, Jun3). Technology Use and Intellectual Disabilities. 128 th Annual American Association on Mental Retardation, Philadelphia , PA.

Williams, D. C. , & Perone, M. (2004, May). Aversive properties of positive reinforcement in pigeons and people. In Timothy R. Vollmer (Chair), Behavior analytic bridge studies: Addressing issues of application via basic research. Symposium conducted at the meeting of the 30 th Annual Association for Behavior Analysis Convention, Boston , MA .

Memberships

Rud Turnbull was re-elected for another term as chairman of the board of trustees of the Judge David L. Bazelon Mental Health Law Center . This is Rud's fifth term. The center is the oldest public interest law firm in the area of disability law.

Central Office News and Announcements

Human Resources

Recording Friday, June 11 State Holiday compensation time pay

Sherilyn LaDuke, Assistant Director for Personnel Services

Exempt and non-exempt KU staff who worked on, Friday, June 11, 2004 , the day that was declared a state holiday in honor of former President Reagan by Governor Sebelius, earned compensation time the rate of time and a half. Each hour of work you worked on that day equals one and a half hour of compensation leave. So if you worked all day - 8 hours - you have 12 hours of compensation time that may be taken beginning with the time period of 06/20/04 - 07/03/04.

Exempt staff should record their compensation hours used as HCE and non-exempt as HCT.

If you have any questions, please contact me at: sherilyn@ku.edu .

Project Development

Paul Diedrich, Associate Director for Project Development

Past Submissions not Previously Reported

1. Steve Mills submitted his second year continuation “Kids Crew: The Independence Community Learning Center” to USD 446 on June 2, 2004

2. Steve Fowler and Troy Zarcone submitted a new, one-year proposal “Collaborative Research Regarding Grid-Plate Actometers and Functional Motor Performance Measurement” to the Genzyme Corporation on June 2, 2004 .

3. Dave Lindeman submitted his seventh-year continuation “Kansas Inservice Training System: Infant and Toddler Component” to the Kansas Department of Health and Environment on June 9, 2004 .

4. Dave Lindeman submitted his continuation “Active Treatment Training Program” funded by the Parsons State Hospital and the Kansas Neurological Institute on June 9, 2004 .

5. Dave Lindeman submitted his seventh-year continuation “Southeast Kansas Respite Care Services (SEKRS)” to the Parsons State Hospital and Training Center on June 10, 2004 .

6. Dave Lindeman submitted his seventh-year continuation “Cooperative Project on Dual Diagnosis of Persons with Disabilities” to the Southeast Kansas Respite Services, Inc. on June 10, 2004 .

7. Diane Loeb submitted her fourth-year continuation “A Comparison of Language Intervention Programs” to the University of Texas , prime contractor to NIDCD, on June 11, 2004 .

Amy McCart and Wayne Sailor submitted four new, three-year proposals “Comprehensive School Reform: The Positive Behavior Support and Math Proficiency Model” to the Kansas Department of Education on June 18, 2004 via the following Kansas City , Kansas schools:

8. Douglass Elementary School ;

9. Whittier Elementary School ;

10. Rosedale Middle School and

11. F.L Schlagle High School .

12. Jerry Schultz and Stephen Fawcett submitted their third-year continuation “Community Monitoring Documentation System” to the Kansas Department of SRS on June 25, 2004 .

13. Dave Lindeman submitted his continuation “Child Care Focus: Resource and Referral Center ” to the Kansas Association of Child Care Resource and Referral on June 28, 2004 .

14. Dave Lindeman submitted his continuation “Child Care Focus: Infant-Toddler Initiative Project” to the Kansas Association of Child Care Resource and Referral on June 28, 2004 .

15. Sara Sack submitted her second-year continuation “Equipment Exchange” Increasing Access to Durable Medical Equipment” to the Kansas Department of SRS on June 30, 2004.

Upcoming Submissions

1. Judith Carta will submit a new, three-year proposal “Early Reading First – Wyandotte County, Kansas ” via Heather Schrotberger, Project EAGLE at KUMC, to the DHHS on July 1, 2004 .

2. John Colombo was invited to be part of a five-year, resubmission proposal “DHA Supplementation and Pregnancy Outcome” by Susan Palmer at KUMC, prime contractor to NIH, which will be submitted July 1, 2004 .

3. Todd Little was invited to be part of a five-year, resubmission proposal “Household Instability in Low-Income Neighbors” by Brad Lian at the University of Alabama , prime contractor to NIH, which will be submitted on July 1, 2004 .

4. Dean Williams and Kathryn Saunders , in collaboration with Michael Perone at West Virginia University and Iser DeLeon and Michael Cataldo at Johns Hopkins, are resubmitting a five-year proposal “Laboratory Models of Maladaptive Escape Behaviors” to NICHD on July 1, 2004

5. Troy Zarcone is resubmitting a one-year, RO3 “Behavioral Consequences of Amphetamine Dependence in Mice” to NIDA on July 1, 2004 .

6. Mabel Rice is submitting her third-year, non-competing continuation for the P30 Center “Biobehavioral Sciences in Communication Disorders” to NIDCD on July 1, 2004 .

7. Michael Wehmeyer is submitting his second year, grant performance report “The Impact of Interventions on Self-Determination and Adult Outcomes” to DE/OSERS/NIDRR on July 1, 2004 .

Will report on the seven new proposals being submitted to DE/OSERS/OSEP's Research and Innovation competition that are due on July 9, 2004

New Awards (not previously funded) Information

Will report on new awards for FY 2005 next month.

Jessica Black for Karen Henry

Assistant Director for Communications

The Schiefelbusch Institute for Life Span Studies

The University of Kansas
1052 Dole Human Development Center
1000 Sunnyside Avenue
Lawrence , KS 66045 -7555
(785) 864-0756 TTY (785) 864-5051 FAX (785) 864-5323
www.lsi.ku.edu

Comments and questions to: lifespan@ku.edu


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