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February 2002

News for the investigators, staff and associates of the Schiefelbusch Institute for Life Span Studies

Karen Henry, editor

The Life Span Institute at the University of Kansas

1052 Dole Human Development Center

1000 Sunnyside Avenue

Lawrence, KS 66045-7555 (785) 864-4295 TDD (785) 864-5051

LSI web site:



Steven Barlow's high-tech pacifier featured on state-wide radio program

Rhonda Montgomery tapped for Rosalyn Carter Institute expert panel of caregiving

KUCDD & RD&A directors' search update

Center for Family, Neighborhood and Community Policy officially closes

Administration News

Project Development
February update

Research Design & Analysis and Information Technology Services...Norton Utilities installation, Scheduling Posters & Presentations, Technology related purchasing scheduling

Faculty photo portraits, Results of LSI Communications/Outreach Survey #1

Credit card receipts no longer valid for out-of-pocket expenses

Steven Barlow's development of high-tech pacifier nets radio feature

Steven Barlow, Professor and Chair of Speech-Language-Hearing: Sciences & Disorders Department and Director of the Communication Neuroscience Laboratories, was featured on a recent segment of the award-winning radio program, Kansas Kids Health, discussing his development of the Actifier. The Actifier, a high-tech pacifier connected to a computer, induces sucking and swallowing in premature infants so that they can learn to nurse and leave intensive care sooner. But Barlow believes that the Actifier has more profound implications in detecting and treating developmental disabilities. By stimulating the muscles that control sucking and swallowing, the Actifier can help develop and correct brain functioning that is ultimately associated with speech and language. Barlow developed the Actifier with Don Finan at the University of Colorado. Full story at, image of Actifier at (click small image to get a larger view) and radio feature at

Rhonda Montgomery joins Rosalynn Carter Institute panel

Rhonda Montgomery, Professor of Sociology and Director of the Gerontology Center, was selected to serve on an advisory panel examining caregiving across the life span for the newly established Rosalynn Carter Institute Caregivers Program. She is one of nine national expert panelists who will address age specific, current, and future caregiving needs in regards to policy, practice, research, education, and training. The panel will develop a caregiving book series following the 2002 panels.

KUCDD Director, RD&A Director Searches Update

All candidates for both positions have been interviewed. LSI hopes that the successful candidates will be announced within the month.

Center for Family, Neighborhood and Community Policy Closes

LSI's Center for Family, Neighborhood and Community Policy is officially closed. The former director, Martin Gerry, left LSI to become the Deputy Commissioner of the Social Security Administration for Disability and Income Support Programs for the Bush administration on December 3.

Gerry's research at KU centered on the effect of legislative and social policy on the lives of people with disabilities. More specifically, Gerry was concerned with ticket-to-work and self-sufficiency programs, developing credit unions for and by people with disabilities, and methods of obtaining affordable health insurance.

Administration News

Project Development

Paul Diedrich, Associate Director for Project Development

Past Submissions not Previously Reported

1. Cheryl Utley and Charles Greenwood submitted a new three-year proposal “Moving What We Know About Contextually Relevant Assessment to Scale in the Education Services of Students with Disabilities” to the USDE/OSERS/OSEP competition CFDA# 84.325N – Projects of National Significance on January 25, 2002.

2. Stephen Fowler submitted his year 14 non-competing continuation “Biophysical Study of Antipsychotics Behavioral Effects” to NIMH on February 1, 2002.

3. Susan Kemper submitted her year 10 non-competing continuation “Research Training Program in Communication and Aging” to NIA on February 1, 2002.

4. Richard Saunders, in collaboration with Kathleen Drake, David Richman, Matthew Reese, Muriel Saunders, Stephen Schroeder and Jennifer Zarcone, submitted the year 10 competing continuation “Severe Aberrant Behavior Among Persons with Retardation” program project to NICHD on February 1, 2002.

5. Mabel Rice, in collaboration with Steven Barlow, Nancy Brady, Hugh Catts, Mark Chertoff, John Colombo, Dianne Durham, Mary Lee Hummert, Susan Kemper, Diane Loeb, Holly Storkel and Michael Vitevitch, submitted a new, five-year proposal “Behavioral Neurosciences in Communication Disorders” to the NIDCD Research Core Center Grants competition on February 1, 2002.

6. Kere Hughes submitted a new, five-year, KO1 proposal “Parental Caregiving Schemas and Child Neglect” to NICHD’s Career Development Awards: Child Abuse and Neglect Research competition on February 1, 2002.

7. Richard Washburn submitted a new, two-year proposal “Resistance Training for the Prevention of Obesity” in response to NIDDK’s Small Clinical Research Grants competition on February 1, 2002.

8. Judith Carta submitted her year 2 non-competing continuation “Early Head Start Research Partnership Project” to HHS/ACYF on February 15, 2002.

9. Judith Carta submitted a new one-year proposal “Evaluation of the Early Learning Opportunities Act Grant” to the Mid-America Regional Council (MARC) on February 20, 2002.

10. Vincent Francisco and Stephen Fawcett submitted a new one-year proposal “Center for Youth and Community Development for Juvenile Justice” to the Kansas Juvenile Justice Authority on February 21, 2002.

11. Charles Greenwood and Mary Abbott submitted their year 3 grant performance report “Classwide Peer Tutoring – Learning Management System: Technology Supporting Literacy, Accountability and Access to General Education Curriculum” to USDE/OSERS/OSEP on February 22, 2002.

12. Jane Wegner and Brenda Myles submitted their year 3 grant performance report “The Communication and Autism Project (CAP)” to USDE/OSERS/OSEP on February 22, 2002.

Upcoming Submissions

1. Steven Barlow will submit his year 2 non-competing continuation “Functional Outcomes of Cleft Lip Surgery (prime contractor the University of North Carolina – Chapel Hill) to NIDCD on March 1, 2002.

2. Kathryn Saunders will submit her year 4 non-competing continuation “Interdisciplinary Research Training in MR/DD” to NICHD on March 1, 2002.

3. Holly Storkel will submit her year 2 non-competing continuation “The Mental Lexicon in Language Acquisition” to NIDCD on March 1, 2002.

4. Michael Wehmeyer submitted his year 3 grant performance report “Access to the General Curriculum for High School Students with Mental Retardation: Curriculum Adaptation, Augmentation and Alteration” to USDE/OSERS/OSEP on March 1, 2002.

5. Jerry Rea, in collaboration with Dean Williams and Kathryn Saunders, will resubmit “Treatment Generalization of Deviant Sexual Arousal in MR” to NICHD on March 1, 2002.

6. Stephen Fowler, as a collaborator with Barry Festoff, PI at prime contractor KUMC, will resubmit a two-year proposal “Synuclein Aggregation, Degradation and the Proteasome” to NIH on March 1, 2002.

7. Charles Greenwood and Carmen Arreaga-Mayer will submit their year 3 grant performance report “Post-Doctoral Leadership Training Program in Intervention Research for Culturally/Linguistically Diverse Students with Disabilities” to USDE/OSERS/OSEP on March 8, 2002.

8. Richard Washburn, in collaboration with Joseph Donnelly, Cheryl Gibson, Jerry Greene, Dennis Jacobsen, Matthew Mayo and Debra Sullivan, will submit a new three-year proposal “Prevention of Obesity in YMCA Daycare Centers” to NIDDK’s Environmental Approaches to the Prevention of Obesity on March 14, 2002.

New Awards (not previously funded) Information

1. Judith Carta, Ann Turnbull, Charles Greenwood, Debra Kamps, Jean Ann Summers, Wayne Sailor, Barbara Thompson and Eva Horn received a new five-year award “Advancing Multiple-Levels of Evidence-Based Practice for Children with Challenging Behaviors and their Families” from prime contractor the University of South Florida from USDE/OSERS/OSEP, which began January 1, 2002.

2. Steven Barlow received a new five-year award “Sensorimotor Control of the Human Orofacial System” from NIDCD that began January 15, 2002.

3. Mabel Rice received a new five-year award “Training Researchers in Language Impairments” from NIDCD that is scheduled to begin April 1, 2002.

Research Design and Analysis and Information Technology Services

Janet Marquis, Director, Research Design and Analysis and Information Technology Services

Norton Utilities The Norton Utilities order has been placed for those who requested it. We expect installation to begin sometime in the middle of March. We will be contacting you regarding a convenient time for the installation and training.

Posters and Presentations Many of you will be participating in conferences this spring--April seems to be an especially busy month. If you are planning to have Chris create a poster or help you with a Power Point presentation, please contact him soon just to let him know when and what services you will be needing. If you’re not sure yet of your needs, remember that it is important to get on his schedule at least three weeks in advance to guarantee that he can get your work done. You can reach Chris at 4-4680 or

Purchasing For those of you planning to make technology-related purchases with Edith’s assistance, she will be unavailable March 25-27, and April 8-12.


Karen Henry, Communications Coordinator

Needed: Your head and shoulders -- low-cost University Relations photography services

If you don't have a recent (or good) head and shoulders portrait, I would encourage you to schedule a setting with UR at your earliest convenience. We often seem to be scrambling around for a portrait to be sent with news releases and we will eventually want a good portrait of you for the Web site, annual report, etc.

Below is a memo from Doug Koch, head of UR photographic services. The upshot is that all faculty can have portraits shot at UR, but only key administrators, directors, new or named faculty are free. Your portrait would also be free if you are the subject of a news release. Otherwise, there is a very modest fee for the setting and a digital scan as listed below.

If you do decide to do this, please let me know so I can have a copy of the scan here.

Photographic studio portraits of faculty and staff are available through the University Relations Photography Department. These head-and-shoulder portraits are an essential part of news stories, professional articles and Web sites, all of which help advance KU's mission.

Each August, the Offices of the Provost and University Relations sponsor an annual portrait session limited to new faculty, distinguished and named professors, and key administrators. All other portraits are scheduled by appointment, on a time-permitting and charge-back basis, except for those underwritten by our office as targeted news releases. Higher priority is given to portraits intended for use in recruitment and university-wide information. Unfortunately, group portraits and newsletter photos have a lesser priority.

Individual portraits are available in film-capture or digital-capture formats. Sample costs follow:

For studio portraits at University Relations:
Individual portrait, film-capture, w/ contact-sheet and one 4"x6" print $56.45*
Individual portrait, digital-capture, w/ image file optimized/burned to CD $41.00*

For en masse portraits at University Relations or your site:
Film-capture: $8 per subject (based on 5 subjects per roll), plus $50/hr. labor charge*
Digital-capture: $16 per subject, w/image optimized/burned to CD, plus $50/hr. labor charge*

Caveats- a minimum of ten subjects is required for an on-location session; we reserve the right to limit your option to only one choice of capture-format.

For cost estimates, scheduling and answers to other questions, please contact Doug Koch, Photography Coordinator, 864-8861, or Steve Dick, Chief Photographer, 864-8862,

FAQ: Wardrobe: We recommend business attire, with somewhat understated colors, textures and patterns; please avoid wearing clothing with stark white or black tonal values. Location: The portrait studio is located in the Office of University Relations, Wesley Building (behind Smith Hall), 1314 Jayhawk Blvd., KU Lawrence campus. Copyright: University Relations retains the copyright and physical ownership of originals produced by its staff. The photo library is maintained as a resource for internal communication, recruitment, news and other publicity.

*The above cost estimates are based on payment with public monies. Payment with private monies requires a 45% non-university use fee and sales tax.

Results of LSI Communications/Outreach Survey #1

17 surveys were returned and the results include yes or no responses, but not non-responses.

I've attached the MS Word file for the survey below so you still have a chance to tell us where you are and what you need in terms of communications/outreach support.

Number crunching courtesy of Jessica Black.

Web presence

1. I would like my biosketch and photograph to be on the LSI website.

Yes 82% No 12%

2. (for Center directors) I would like LSI Communications to manage my Center’s web presence within the general LSI site

All four Center directors who answered this question, answered in the affirmative.

3. (for Center directors) If 2 was yes, check what you would like on the LSI website:

In order of importance:

Ability to search by keywords to get lists of LSI projects, investigators, services, etc.

Ability to update your own personal information via a secure web form

Center logo or other graphic identifier

Web data collection, surveys, or other forms to collect user input

Secure web interface for ordering LSI publications/products

Maps – of service areas, etc.

LSI private/public calendar that you could update via secure web form

Graduate and training programs

Media relations

1. I would like to be included in an LSI or University Relations “expert list” when reporters request opinion/comment on news or feature

Yes 65% No 24%

Areas of expertise:

Families and poverty issues

Family involvement in education and early childhood intervention

Dynamics of professional team development (both intra- and inter-agency)

Low-income fathers of young children

Disability policy

Education of students with MR


Technology use and MR

Community health

Community development

Evaluation of community initiatives

Independent living

Changes in brain neurochemistry related to environmental conditions

Communication and aging

Media and aging

Grandparent-grandchild relationships

Stereotypies of age

Literacy instruction

Research to practice

Aspects of technology

Media effects on children from birth to 18 including academic outcomes, social outcomes, prosocial behavior, body image, literacy behavior, literacy instruction and language development

Parents' role in mediating positive and negative effects of media

Emphasis on positive role of educational television and other media on development and learning in children

Communication and language development in young children and children with disabilities including autism.

Use of augmentative or alternative communication devices

2. I am willing to be interviewed by a print reporter:

As a subject expert
Yes 65 % No 24%

In response to LSI news release
Yes 59% No 18%

3. I am willing to be interviewed by a radio reporter:

As a subject expert
Yes 53% No 24%

In response to LSI news release
Yes 47% No 24%

4. I am willing to be interviewed by a television reporter:

As a subject expert
Yes 59% No 24%

In response to LSI news release
Yes 59% No 12%

5. I am willing to be interviewed by a KU journalism student Print/TV/radio reporter:

As a subject expert
Yes 53% No 18%

In response to LSI news release
Yes 53% No 18%

Center Communications

1. (for Center Directors) I have a staff member(s) who does public relations/communications duties for my Center. Yes 6% No 18%

2. Please rate your Center communications needs from 1 to 5 with one being the area for which you need the most assistance:

Publication development:
1________ 3.14 avg.__________5

Publication design:
1____________3.29 avg.________5

Web presence:
1_____2.29 avg._______________5

Web interactivity:
1__1.86 avg.__________________5

Web site organization:
1_____2.29 avg_______________ 5

Publicizing Center news:
1_________3.14 avg___________5

1_________3.14 avg____________5

Event planning:
1________________3.86 avg.____ 5

Research participant recruiting:
1________________3.86 avg.____5

Direct services advertising/marketing:
1_________3.14 avg____________5

LSI Communications Projects

How would you prioritize the following five (1 to 6 with 1 being the highest priority) LSI projects in terms of the overall Institute communications needs?

Ranked according to responses:

1. LSI website with ability by site visitor and LSI staff member, etc. to quickly access information dynamically via searches by keywords, names, geographic location, etc.

2. More emphasis on pitching LSI news to bigger media outlets, KC and Topeka TV, etc.

The following tied for third place:

3. LSI annual report

3. Searchable online MRDDRC and LSI Guides to Services for use by current investigators as well as to recruit new scientists.

3. PowerPoint presentation with “modules” focusing on, for example, direct services, rural Kansas, aging, urban Kansas City/Topeka, work with schools, etc. to mix and match for audiences.

4. Marketing LSI direct services

Accounting Jan Grady, Chief Accountant

Out-of-Pocket Expense Receipts - Credit Card Receipts No Longer Acceptable

This is a reminder that reimbursements to staff for any out-of-pocket expenses must have an itemized and or official receipt. In the past, credit card receipts have been acceptable but are no longer acceptable as documentation for an expense. Most places will provide an itemized receipt when requested. When no itemized receipt is available, you must provide the following statement on the receipt:

“This is the original and only receipt provided by the vendor. Please pay from this receipt.”

Comments and questions to:

The University of Kansas prohibits discrimination on the basis of race, color, ethnicity, religion, sex, national origin, age, ancestry, disability, status as a veteran, sexual orientation, marital status, parental status, gender identity, gender expression, and genetic information in the university’s programs and activities. Retaliation is also prohibited by university policy. The following persons have been designated to handle inquiries regarding the nondiscrimination policies and are the Title IX coordinators for their respective campuses: Executive Director of the Office of Institutional Opportunity & Access,, 1246 West Campus Road, Room 153A, Lawrence, KS 66045, 785-864-6414, 711 TTY (for the Lawrence, Edwards, Parsons, Yoder, and Topeka campuses); Director, Equal Opportunity Office, Mail Stop 7004, 4330 Shawnee Mission Parkway, Fairway, KS 66205, 913-588-8011, 711 TTY (for the Wichita, Salina, and Kansas City, Kansas, medical center campuses).